What should I expect after cystectomy for aggressive bladder cancer?

I understand the roller coaster of emotions I’m feeling it all the time. I agree with your thoughts about getting rid of the cancer completely. Your husband will be there to help you navigate. Prayers are heading your way!

Thank you!

😇🙌💪

Thank you.

Hi Christine, my name is Mary, I'm 69 next month.Hsd a TURBT procedure 1st..showed MIBC..muscle invasive bladder cancer...after many months of what my PCP thought were UTI'S. IT took about 3 weeks of recovery. Pathology report showed I had stage 3 urothelial and sqamous cell carcinoma. Highly aggressive tumor invading muscle lining of bladder which was 5.1 cm. On 8/21 i had radical cystectomy, hysterectomy & 20 lymph nodes removed..was 8 hr surgery..I opted for what is called ILIEUM CONDUIT. I now have a stoma near my belly button where urine runs out I m to a urostomy bag. I just wanted to get cancer out !!!1 st week post op was REALLY TOUGH & 2nd week i went to rehab because my body was so week from having the cancer drain body along w 8hr surgery. I got alot stronger & had to go home to be dealing w this all by myself!! 1st month is really TOUGH...Its your body healing & mind mentally processing the new set of circumstances handed to me. Lots of trial & error w urostomy pouch..takes awhile to get adapted..had a million questions!! At 6 weeks post op & driving , grocery shopping & running all my errands 🙃 still adapting...GOOD Luck 👍 w whatever u decide ..just face it right on & go for it...u got this girl!🥰🙏👍

Was driving after 3 weeks

Thanks Mary, that helps a lot. My surgery is Monday. I am not nervous at all. So far mine is non muscle invasive. Do you have chemo? I was told maybe. I didn't know really what to expect and your post really helped Hopefully you will recover fully and kick that cancer in the butt.

mghostomynurses@mgh.org...a support group from MGH where I had my surgery...this site might be helpful also 👍🙏

Facing such a major decision while dealing with an aggressive cancer diagnosis brings up so many valid concerns about recovery and life changes ahead. Many community members have shared that connecting with others who've been through similar surgeries can provide valuable insights about the recovery process and practical tips for adjusting to changes. Consider asking your urologist specific questions about what recovery typically looks like, support resources available to you, and connecting with patient navigators who can help guide you through this journey.