Struggling with Mesothelioma Treatment and Side Effects

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DB

Community Member

6 months ago

I was diagnosed with pleural mesothelioma 9 months ago. The tumor grew during chemo so I stopped it after only 4 infusions. I had no confidence in my Oncologist. So, I switched doctors and hospitals. After two treatments of immunotherapy, I got an auto-immune which has caused treatment to stop. Now I've been on prednisone for months to stop the diarrhea, but not much success. I feel things just keep getting worse for me. I know my cancer is incurable, but I just want to feel better and shrink the tumor. I feel lost.

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Accepted Answer

Dealing with treatment complications and setbacks can feel overwhelming, especially when facing an already challenging diagnosis. Many people in this community understand the frustration of switching treatments and managing difficult side effects that impact quality of life. This space offers valuable support from others who share similar experiences, and connecting with fellow community members might provide both practical insights and emotional comfort during this difficult time.

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BA

Community Member

6 months ago

I'm sorry you are suffering so. I also want to feel better, after 2 surgeries and 33 radiation treatments for Stage 4 oral cancer. I'm slowly healing, but it seems like some other related things keep showing up. I am lost, too. I am trying to stay positive, wanting to be busy with life, but here I am on the couch again. I hope you will be able to get a different treatment that improves your quality of life. We need to be strong, even while lost.

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CA

Community Member

2 months ago

Dealing with treatment complications and setbacks can feel overwhelming, especially when facing an already challenging diagnosis. Many people in this community understand the frustration of switching treatments and managing difficult side effects that impact quality of life. This space offers valuable support from others who share similar experiences, and connecting with fellow community members might provide both practical insights and emotional comfort during this difficult time.

Struggling with Mesothelioma Treatment and Side Effects

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