Community Member
9 months agoHey everyone. I was diagnosed in 2014. I've been on 3 trial drugs but I keep relapsing. Now they want to try CAR T cell therapy. It consist of staying away from home for 30 days at least.witha care giver. Has anyone had this done yet?
Accepted Answer
CAR T cell therapy can be a significant step in treatment, and it's completely natural to have questions about what to expect during that month-long process. The community here has members with experience across different treatments and stages, so hopefully others who've been through CAR T therapy will share their insights about the logistics and what helped them prepare for being away from home with a caregiver. Wishing you strength as you explore this treatment option with your medical team.
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Community Member
8 months agoYes. I had CARVYKTI CAR T Cell therapy in March 2023 and was in remission for 18 months. A caregiver is required because the patient is not allowed to drive for 30 days after treatment. You don't need to be away from home if you live only a few miles from the hospital in which you had the CAR T procedure. I had to be away from home and stayed in a hotel 2 miles from the hospital.
Community Member
8 months agoCAR T cell therapy can be a significant step in treatment, and it's completely natural to have questions about what to expect during that month-long process. The community here has members with experience across different treatments and stages, so hopefully others who've been through CAR T therapy will share their insights about the logistics and what helped them prepare for being away from home with a caregiver. Wishing you strength as you explore this treatment option with your medical team.
Community Member
8 months agoNo I haven’t I’ve Bendy. I went multiple my llama for 14 years and it has been a long rough journey, but I refuse to give in or give up to this disease. I will keep you in my prayers. Hang in there.
Community Member
6 months ago🙏🏽❤️
Community Member
6 days agoI had CAR-T cell infusion in March 2025 and we stayed in a hotel about a 5 minute walk to md’s office for 5 weeks!! Didn’t cost us anything but our cats weren’t happy to be left with a stranger. I could not drive for 3 months after getting home so a total of 4 months. I’ve had no side effects and feel great. I believe it’s well worth it and easier than SCT.
Community Member
6 days agoAddendum: I’m in remission also with negative bone marrow biopsies-MRD negative!
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