Multiple Myeloma

How to stay active with multiple myeloma during Darzalex treatment?

I have multiple myeloma and am currently getting Darzalex (daratumumab) injections and taking dexamethasone. I've been dealing with fatigue and muscle weakness, which makes it hard to stay active. I came across some helpful tips about starting small with movement - like walking short distances and timing exercise around when I have the most energy. Since my treatment can be pretty draining, I'm wondering how others have managed to stay moving during similar treatments. • What types of gentle movement or exercise worked best for you during treatment? • How did you handle the fatigue and still find energy to be active? I'd love to hear what has worked for others with multiple myeloma, especially if you've been on similar treatments. Link: https://outcomes4me.com/cancer-topic/exercise/5-simple-ways-to-move-more-after-a-cancer-diagnosis/

Is TP53 deletion in relapsed myeloma a death sentence or is there hope?

I have had multiple myeloma since 2008. Had a stem cell transplant in 2009. Have done well with maintenance therapy through the years. M spike started in the fall of 2025. It reached 1.4 in April so my hematologist ordered bone marrow biopsy and PET scan. Results show no lesions or bone/kidney damage. I feel okay but 15% of bone marrow is myeloma. He says I have relapsed myeloma. I have deletion of TP53 gene at 17p13.1 gain of chromosome 7 and 9, deletion of 13q and loss of IGH/14q, FGFR3/4p and MAF/16q. He says this will cause myeloma to be more aggressive. He is sending me to MM center at Univ.of Arkansas for further evaluation. I am a born again believer in Jesus Christ and a man of prayer but this is concerning to me. Can anyone "interpret" what the deletion of TP53 gene means? Is this an imminent death sentence or is there hope to put the myeloma back into remission? concerning to me

What new multiple myeloma treatments were presented at ASCO 2026?

Uncover a recap of two exciting research updates for relapsed/refractory multiple myeloma presented at the 2026 ASCO Annual Meeting. https://outcomes4me.com/cancer-topic/multiple-myeloma-progression-and-recurrence/multiple-myeloma-updates-patients-should-be-paying-attention-to-at-asco-2026/

How did faith in Jesus help with my multiple myeloma recovery?

Good day everyone I am a multiple myeloma survivor. I decided to put my faith in the Lord Jesus Christ, who heals everyone the doctors only can treat, but God can heal. God heal me from all of my diseases. I am talking to you today on facts and truth Jesus is real trust in him with all your heart.♥️🙏

How to cope with walking difficulties after light chain myeloma diagnosis?

I have light chain mm and was diagnosed with 3 weeks ago. Was hospitalized for 1 month. Had anyone else have issues walking from one room to the other. Frustrated to say the least. Chemo sucks

Are herniated discs related to my light chain myeloma progression?

I have light chain myeloma low level disease and currently on active surveillance… my recent mri showed several herniated discs and kappa is 100.3 and ratio 2.41.. both slowly rising… are herniated discs from the myekoma

How to manage nausea and digestive issues during myeloma treatment?

Struggling with myeloma treatment nausea or GI issues? Learn practical tips for managing digestive side effects like constipation or diarrhea. https://outcomes4me.com/cancer-topic/in-treatment-for-multiple-myeloma/a-guide-to-managing-multiple-myeloma-digestive-side-effects/

What should I expect from a bone marrow biopsy for bone lesions?

I have lyric lesions and a tumor with calcium on my right side om getting a bone marrow biopsy Tuesday so they can give me treatment once again im nervous I hope and pray 🙏🏾 I will be okay

What to expect after MMO diagnosis and upcoming bone marrow biopsy?

I just found out I have MMO after I fractured my vertebrae Tuesday im getting a bone marrow biopsy so they can decide what treatment to give me im not sick or anything i get out and do things just my back hurts some I hope the treatment works ibjust turned 65 enjoying retirement now this i pray that I can live long im nervous

Can CAR T-cell therapy prevent multiple myeloma from becoming active?

New research suggests CAR T-cell therapy can stop multiple myeloma before it becomes active. See the new data from the AACR Annual Meeting. Read more: https://outcomes4me.com/cancer-topic/just-diagnosed-with-multiple-myeloma/can-car-t-cell-therapy-stop-multiple-myeloma-before-it-starts/