What should I expect after being diagnosed with multiple myeloma?

Welcome to the community! Getting a multiple myeloma diagnosis can feel overwhelming, and it's completely natural to have questions about what lies ahead. Many community members have shared their experiences navigating treatment options, managing side effects, and finding the right care team, so connecting with others here who understand this journey can provide valuable insights and support.

Hi Cynthia, I am sorry you have been diagnosed with multiple myeloma. The bone marrow biopsy scared me, so I requested sedation. Have you had the PET scan yet? If not, that is also a test they will order to find any lesions you may have. Everyone's treatment is different. Be sure to ask about the side effects of the treatment. I had some issues with lenalidomide/revlimid and velcade. If you do have side effects, be sure to let your doctor know. They have many drugs that can help lengthen your life. I was 63 when diagnosed and have had stem cells harvested, but the doctor said I would not do well with transplant at that point due to side effects and what I wanted to achieve by having it. I wanted to go back to work and finish out my career until retirement. That didn't work out, I had to go on short-term disability and eventually long-term disability. I wish you all the best with your journey. Remember, it is a marathon!

A lot of newer treatments now compared with 20 years ago,I've been on immunotherapy for over a year,had the bone marrow done, I think that is just to confirm myaloma,a CT scan can tell all,I've been on immunotherapy over a year,they keep wanting to do the cart cell procedure where your blood is modified, family member with hospital knowledge said very hard on the person,,I said no,procedure starts at 300,000,woner why they keep pushing it

I had CAR-T cell infusion just over a year ago and I had no problems with it. One night of a fever and no problems at all since. I feel great and now in remission. My providers are very pleased.