Has Anyone Else Been Diagnosed Without Symptoms?

I was diagnosed in 2016 & have relatively few symptoms. Tired more often but I’m 77 now. The disease hasn’t stopped me from exercising or performing daily activities

I was diagnosed in January of 2024 at 38. I am extremely fatigued and currently been suffering from boil break outs due to a suppressed immune system. I am jak2 positive and have ET

I was diagnosed in 2023. I’ve had multiple blood clots and bone pain I have ET JAK2. Oh and very tired.

Diagnosed in March of this year. Talked my doctor into testing me for blood cancer.

I was recently diagnosed, I have Jack two and other chromosome mutations, M level two or three and going through testing for a bone marrow and stem cell transplant. Not sure if I will be a candidate, age 74 with some other minor health issues, but if they say I am, I have to decide whether I want to go forward or not.Anyone else in this situation or who has gone through a transplant successfully? The side effects and demands on a caregiver, who would be my wife, for at least 3 to 6 months are overwhelming. Also, not very comfortable with the survival rate after transplant, lifespan, and other issues involved.

Thanks for your replies. Good luck to us all!

I will pray it all works out for you. I have ET the most I have is fatigue. But I do have severe back pain from two Spinal fusions. Last one was 2019. And would you know that I have a couple screws that have loosened!! lol ( now they can say I’m really screwy) all kidding aside . It’s pretty bad with pain level a ten. Between that and fatigue levels from ET is no fun. But we ALL need someone we can lean on. This is a good spot. We need to pray to Father God for the strength we all need.💖🛌🙏🏻✝️

KariAnn You from VT and just moved back to OREGON? This is Auntie Dottie 💕❤️

For me it’s fatigue and pressure headaches

Getting diagnosed without noticeable symptoms is actually quite common with myeloproliferative neoplasms, as these conditions are often discovered through routine blood work before any symptoms develop. Many community members have shared similar experiences of feeling surprised by their diagnosis when they felt completely fine. This can bring up a lot of questions and emotions, and connecting with others who've been through the same experience can be really valuable.

This is what happened to me as well… I went for 10 yrs with just blood donations… symptoms came recently! Spleen 22cm, itching any temp change from cool to hot, fatigue, headaches, dizziness, and bone pain. Post PV MF, JAK2, Trisomy 8, del20Q, allele burden 88%, MF 2/3, anemic and platelets dropping - started Jakafi 15 mg 2x/day, 2 weeks ago and spleen shrinking already! Depending on response will start preparing for sct Feb 2026

Thanks for the reply Kim. Prayers be with you for success on whatever journey forward you take. I have recently been approved as a candidate for transplant, but I’m not sure if I’m going to go that route yet. Have two other hospitals to give me their opinion, and then I will make my decision.

Bob, We are in similar positions! I have one other opinion I am seeking, for right now, and then I will probably be waiting to see how I respond to the Jakafi… and we will go from there. I don’t want to miss my window of optimal opportunity for the best outcome. It is a difficult decision but the women in my family traditionally live well into their 90’s with relatively good health 😊 and I want to do the same, if possible! Keep us posted as I am interested in following along with your journey. - Kim