What to Expect from Lutathera Treatments?

Is this for adrenal cancer?

No. This is for neuroendocrine cancer.

I just completed my four infusions with Lutathera. I would say I was slightly nauseated during my treatment but quickly went away with some anti nausea drugs. After wards 24 to 48 hours later I felt sluggish or uncomfortable, This feeling went away around day three/ four. If you don’t have an inversion to needles your will be fine. Both your arms will have iVS.

Eric, That sounds really encouraging. Thank you very much for the information. Larry P.

How are you both feeling now post-Lutathera? I am waiting to be scheduled for my first treatment because I have a lot of reactions to medications that most people don't experience. Thanks for any additional insight that you can provide.

I should have said that I'm nervous because I have a lot of drug reactions that most other people don't experience.

Just completed 8 months of Lutathera treatments, awaiting results with baited breath. Ask about Histotripsy

Starting a new treatment can bring up many questions and emotions. Many community members have shared their Lutathera experiences here, and connecting with others who understand this journey can provide valuable insights and support. Consider reaching out to fellow patients in this community who may be able to share their personal experiences with the treatment process.

Thank you. I will. I know a little bit about Histotripsy because my husband had a liver transplant in late January. Prior to having the transplant, he was treated with Y-90 but we did inquire about Histotripsy. Thanks again. BTW, after multiple opinions, it was decided that I should wait to start lutathera and I was re-started on lanreotide shots every 28 days. I'm getting re-scanned in November so we'll see what my direction is.

Robbi, I hope your scans went well! Do you and your husband both have neuroendocrine cancer?? I had y-90 to my liver and it was successful but he had that and then later had a liver transplant?? How is he doing? I am on lanreotide every 28 days and unfortunately now I'm going to have to start on PRRT January 2026. Wishing both of you the very best!

Stage IV NET of ileum here. My Lutathera treatment went well all things considered. I didn’t get sick or nauseated really that I can remember. I also have Spondyloarthropathy and I am in some pain that seems worse with the cold weather we are experiencing. It’s a little hard to separate cancer symptoms from arthritis symptoms since the primary cancer tumor is at my sacro-iliac junction (tailbone) and the arthritis pain is bad there too. My lanreotide shots stopped working for the last time (a year prior I had to have spine radiation and then it totally stopped helping) before I began Lutathera. I had 3 treatments and couldn’t get the 4th because of severe fatigue due to reduced blood counts. My oncology team monitored my counts monthly and tracked the tumors, which are “dormant” and one spot in my liver is getting a little bit smaller. I’m hopeful and I have a strong faith in God. I pray from strength since I’m a little scared to get too excited since I was gaslit for many years. I was diagnosed with a few months to live, and after lanreotide failed, pRRT treatment has had terrific results for me so far! Good luck to you!

David, how did your results go from your Lutathera treatments?

Erika, what was the success rate of the PRRT? And did you have metastasized neuroendocrine tumors?