How do you cope when remission isn't possible?

I got told that too that's a hard one to swallow still not over it if you figure it out please post it and let me know. Originally I thought my cancer after my bronchoscopy he was just going to tell me all your stage one we're going to cut it out when it came out I said am I going to hug you today he said not today Linda so I knew something was up. And now that it's in both my lungs I can't have surgery there and I can't go into remission or can't be told I'm cancer free I guess ever so if you figure out a way to deal with it please share. Thank you so very much

Facing a progressive diagnosis brings unique challenges that many in this community understand deeply. Finding ways to focus on quality of life, meaningful connections, and taking things one day at a time can help navigate this difficult journey. What strategies or support systems have been most helpful for you during this time?

Ooh I understand this as well. I can’t get a remission word either. I only ever hear we believe it is curable and I get sent on my way. No active treatment since 10/2024; just Guardant testing every 4 weeks and CT and PET scans. Have TONS of inflammation- never could have surgery. It is a tough one to get yourself focused on the positive when we just don’t really know!

i entered my 9th year with stable spots on the brain on firstline therapy with afatinib. you get used to the word PFS progression free survival. my appt with hopkins aent well they have 1 other patient with 14 yrs stage 4. it doesnt bring me elation.. I concentrate on my 101 year mothers needs and move on.

First off don't believe everything they say when it comes to your prognosis I believe a lot of it is attitude and how you personally feel and know that you will recover. I was given 16 to 18 months with treatment to live in May 2023 I was in remission by September 2023. It has come back as of September 2025 I am not doing any chemo I am just taking care of myself physically emotionally spiritually the tumors have not spread they grew a tiny bit in 3 months but my plan is to beat it this time too.