Non-Small Cell Lung Cancer Clinical Trials

Can lung cancer patients share their story in paid research studies?

Hello everyone! 💙 If you’re living with non–small cell lung cancer, there’s a really meaningful opportunity to share your story and help improve care for others. It’s a small virtual focus group (about 3 hours on Zoom), and those who qualify will receive $300 as a thank-you. If you meet certain stage and treatment criteria, you may be eligible. Here’s the quick form to check: https://forms.gle/c8b3BiKSX8MkRKFp9 Thank you for being here. Your voice matters more than you know. 💛 Suzanne (Community Moderator)

My Cancer Journey: From Diagnosis to Clinical Trial

Hello fellow future survivors! Diagnosed, NSCLC HER-2 in 2023 w/1 tumor & had a partial wedge resection within a month of the discovery. 1st follow-up showed 2 new tumors that were too small to be seen the 1st time around. Have to admit I was not thrilled that there was no chemo following the surgery, knowing what I know today I would say a huge mistake. From there went thru chemo with immunotherapy, that ended in Jan 2025, The tumors actually grew a tad. When faced with the decision of a much more aggressive chemotherapy, my 2 oncology teams presented an opportunity for a clinical trial that was just starting its 3rd session. I instantly felt at peace & said yes before the Dr’s even finished their discussion. So, since April 2025, I’ve been taking pills every day. 1st follow-up revealed a 53% reduction!! 2nd follow-up, no change :/. Next follow-up is this upcoming week & I’m very hopeful in the Lord that theres more shrinkage. I have not had terrible side effects, but They’ve not been fun. Chemo rash on my legs, sores on my toes & fingers, some hair loss (not all), finger/hands tender & dry. I do get out of all the housework, very blessed to have a close family that has stepped in & I am still able to work. Schedules of the trial are very draining, we’re 1-1/2 hrs away from the hospital. Upside!? So many. The Lord revealed my cancer years before it would have been a question on the Drs mind. I’m only 57 & have many years of life to go. If you’re reading this, we are still breathing & still have fight in us. Medical technology is changing daily which brings even greater hope. I Vinegar baths, Aloe Vera oil, silver & oatmeal baths have become my friends. lol Clinical trials feel lonely since we can’t (or not supposed too) know or discuss with others in the trials & of course the Dr’s can never give details to some questions, because they don't know yet. However, We are not alone in this battle! For me, I’m choosing faith in the Lord Jesus over fear. I look forward to hearing from others & begin sharing & learning more from your walks through this chapter.