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2 months agoHello to the community. I was diagnosed with NSCLC in November 2023. I recently had an MRI done and found out that I have a Pancoast tumor. I had 39 radiation treatments and am now on Keytruda immunotherapy for a total of two years with my last treatment scheduled for Feb. Survival rate for Pancoast tumor is quite bleak. Some of my symptoms now make sense to me. My oncologist continues to tell me that I'm in remission and that I have nothing to worry about. We know our bodies better than anyone and I feel like I'm in the final stages of my life journey. I'm as comfortable with my mortality as anyone can be. I'm struggling with the difficult discussions with my loved ones. They are reluctant to accept my my views of where things are going and prefer to accept the views of my oncologist . When I get to the point where my dignity is gone, I will step into the next journey. Best to all of you and thank you for the support in this forum!
Community Member
2 months agoThese conversations with family about end-of-life wishes can feel incredibly challenging, especially when everyone is processing difficult emotions differently. Consider having honest but gentle discussions about your values and what matters most to you, perhaps with the help of a counselor, social worker, or chaplain who specializes in these conversations - they can often help bridge the gap between different perspectives and create space for everyone to be heard.
Community Member
2 months agoI was recently diagnosed with stage 4 non small cell lung cancer in august .And I have not done any treatments. I've been taking a dog dewormer for the last three months. It seems to be working because i'm not coughing up blood.Anymore. My oncologist is going to give me a new pet scan and see what the results are next month. Didn't want to go through with the after effects of chemotherapy. My girlfriend has alltimers, and I can't afford to put her through the my effects of chemo. Fortunately, i'm feeling pretty good.Except for being tired all the time. They told me it was too late for Radiation After they gave me the results. I'm trying to be really optimistic. We shall see.
Community Member
2 months agoHey Butch, I'm sorry to hear about your situation. It must be extremely difficult with your girlfriend not being able to understand what's going on. I'll keep you in my thoughts as long as I can. Stay strong 💪. I wish you peace in your final journey of this life 🧬!
Community Member
2 months agoThank you guys for the support. My diagnosis was a total shock to me. Nobody told me that I had any type of cancer. Now that I know it's kind of difficult to understand were my demise, is gonna be. It's really weird to try to understand. But like I said, i'm being really optimistic and hope for the best Result for the dog dewormer. FDA does not approve it in the united states. But in europe it is. There's people over there that Are still surviving five years after they said they gave them six months to live. I'm just hoping for the best. I have nothing else yo wish for. Seems to me like the doctors could've let me know when I was at stage one. Although my doctors are from the v.A. I've always been really happy with them until now.
Community Member
a month agoAre you talking about Zimectrin? Horse and dog wormer?
Community Member
3 days agoI was diagnosed with stage 4 non small cell Lung w/brain mets Feb. 2022. I have had 4 rounds of chemo 2 yrs of keytruda and gamma knife to remove the brain tumor. I have been very fortunate to have no serious side effects from my treatments except fatigue. I have changed my diet drastically and mainly focus on my immune system and eliminating as much inflammation in my body as possible. I am able to stay very active so far!! I have gone from my doctor's first saying get your life in order maybe a year to now possibly 7-8 yrs.....stay positive!!
Community Member
2 days agoI love your attitude Nealy. Staying positive really helps in more ways than one. Can be helpful with the actual disease process and also helps with symptoms even if the disease is not treatable. I know staying positive is easier said than done but it is definitely worth the effort!!! Stay as strong 💪 and positive as possible and don't be too hard on yourself when you break down for a short time. Sent with much love 💞💖!
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