Non-Small Cell Lung Cancer

How do I find clinical trials for stage 3b NSCLC recurrence?

Hello and happy holidays to one and all! All indications are that my NSCLC, stage 3b, is becoming active again. I'm scheduled for a PET scan on Jan 14 for clarification. In the meantime, I'm looking for clinical trials. If anyone has any info at all regarding this topic, please post as much info as you can. Thank you very kindly in advance for any contribution!

What treatment options work for K-ras G13C lung cancer mutation?

Hello, I was diagnosed with lung cancer T2bN2Mx in June 2024. I have K-ras G 13C mutation. I'm finding that to mean there's very few treatment options. Initially I was on carboplatin/pemetrexed/pembrolizumab. I developed a very serious toxic reaction that blistered most of my skin. I'm currently taking docetaxel/ramucirum every 3 weeks indefinately. The side effects are so toxic I can't eat or drink for 7-10 days. There's many other side effects as well. I'm hoping to find anyone else that has the K-ras G 13C mutation and what your treatment plan is. Thank you in advance!

Is extreme fatigue and sleeping 14-16 hours normal on pem/pem maintenance?

Have a question for anyone doing the pem/pem maintenance, has anyone been extremely exhausted i mean sleeping 14 to 16 hrs. I can't seem to get any energy and they want me to continue this program for 14 more months. I just dont know if I can keep this up

How do I talk to family about end-of-life with Pancoast tumor?

Hello to the community. I was diagnosed with NSCLC in November 2023. I recently had an MRI done and found out that I have a Pancoast tumor. I had 39 radiation treatments and am now on Keytruda immunotherapy for a total of two years with my last treatment scheduled for Feb. Survival rate for Pancoast tumor is quite bleak. Some of my symptoms now make sense to me. My oncologist continues to tell me that I'm in remission and that I have nothing to worry about. We know our bodies better than anyone and I feel like I'm in the final stages of my life journey. I'm as comfortable with my mortality as anyone can be. I'm struggling with the difficult discussions with my loved ones. They are reluctant to accept my my views of where things are going and prefer to accept the views of my oncologist . When I get to the point where my dignity is gone, I will step into the next journey. Best to all of you and thank you for the support in this forum!

Has anyone tried Zongertinib for NSCLC instead of chemo?

Hi everyone. Was recently diagnosed with Nsclc and already had one chemo infusion which was really bad. Is anyone familiar with new drug Zongertinib? I am going to be taking that now instead of chemotherapy and I was hoping to get some sort of insight about it

What are my options when lung cancer spreads and radiation stops working?

I've been dealing with malignant lung nodules since 2018 which we've treated with radiation. One of the nodules we last radiated was apparently resistant and it's now twice its size and had metastisized to lymph nodes in my chest. I had lung cancer in 2008 and was successfully treated with chemo and radiation and was in remission for 10 years. Going back on chemo this week, and we're waiting on molecular biopsy results to see if I qualify for immunotherapy, as I've been PD-L1 negative in the past. My doctors have told me I'm not a candidate for any more radiation and my lung is too fibrotic for surgery. Very scared about my few options right now.

What's the recovery like after lung lobe removal surgery?

Just had right lower lobe removed and lots of lymphs.....recovering before figuring out what maintenance plan Thank god for surgery to get it out!!!! Praying for everyone I have RET gene fusion as my mutation

Can lung cancer patients share their story in a paid research study?

Hello everyone! 💙 If you’re living with non–small cell lung cancer, there’s a really meaningful opportunity to share your story and help improve care for others. It’s a small virtual focus group (about 3 hours on Zoom), and those who qualify will receive $300 as a thank-you. If you meet certain stage and treatment criteria, you may be eligible. Here’s the quick form to check: https://forms.gle/c8b3BiKSX8MkRKFp9 Thank you for being here. Your voice matters more than you know. 💛 Suzanne (Community Moderator)

How do you stay positive after a shocking stage 4 cancer diagnosis?

Diagnosed on 5 October and had first treatment down today. Diagnosis was shocking as no symptoms present. If I Dan had a motorcycle accident and been on blood thinners precipitating a head CT I may still not know! Stage 4! Thankful for the Vanderbilt Ingram cancer center team and my overall physical condition I’m going to beat this !!

How do you cope with fear after being diagnosed with lung cancer?

Hi my name is Tina. I was just diagnosed im not sure yet with what type just the spot in my lung was bad im still in shock so I dont remember all that was said. My oncologist is supposed to call me back Monday so this is where im left scared an not sure what to do trying to not let my family know how frightened I really am. Any advice would be appreciated ty 😊