Anyone have success stories with chemoradiation for tongue cancer?

Mine is on the tonsil, and spread to lymph nodes. Just finishes 7 wks of radiation and have 2 chemo treatments left. So my jury is still out, but both physicians are encouraged by what they are seeing, especially the daily scans taken prior to the radiation. So I know I may not answered your question but I trust my team and theirs staffs 💯. I wish you well, trust the process, my thought are with you.

Thank you Scott, I’m still hanging in there. I feel great in all other aspects except worrying over weight loss cause by inability to swallow. But I will take your advice, I too trust my team, and the process, they’ve been fantastic. Good luck to you and thank you again for reaching out 🙏💕

Yes, myself.

Hi Sara, I know how you feel about throwing in the towel. I'm only a year into the battle. I have oral cancer, had 3 surgeries and 2 more coming. I've been on a feeding tube this time for 3 months. I would have starved to death without it. Have you considered getting one? You MUST have good nutrition to heal. It takes a lot of pressure off of you when you have no appetite. It will make your life better! Together in the trenches, Barbara

Hi, I’m getting ready to go for radiation for Sinus Cancer. The tumor was fully removed & margins were clear & yet I am so Scared ! I’m really trying to be positive through this 🙏🙏

The radiation treatment is not painful. It's all the side effects that sneak up on you. It helped me to learn about them, so I was as prepared as I could be. I recommend Aquaphor for any burning or dryness, including lips. Good luck! Think positive. Have the staff play your favorite music. One day at a time. Barbara ❤️

Sara I have exact same and I did 6 cysplatin and 35 radiation treatments. I do my scans on 27th to see if they got it all. I’ll let u know but guy I was going through it with just got his scans and NO Evidence of Disease. Think positive

Many people do have positive outcomes with chemoradiation treatment, and it's completely understandable to feel overwhelmed after reading challenging experiences online. Remember that people often share difficult stories more than success stories, so what you're reading may not represent the full picture of treatment outcomes. Consider discussing your specific concerns with your medical team, as they can provide the most accurate information about your particular situation and help address any fears you may have about the treatment ahead.

Stage 4 tongue cancer here, surgery was 5 weeks ago with radiation/chemo concurrently starting Nov 3. Terrified since my radiation team isn't communicating with my oncology team. I have had to advocate for appointments, meds, referrals, etc. So for radiation my mom and many of her friends used green tea on the skin before radiation. Steep 2 tea bags in 1 cup of boiling water and cool. Wet the area to be treated and the skin on the opposite side. Let the tea dry. My mom has had both breast and lung cancer. She never had any red skin from radiation.

Radiation is the worst thing you will ever go through. I went from 238lbs to 175lbs but go on Amazon and buy the Very High Calorie Boost drinks. 530 calories in each one. It will save you from having to get PEG tube. I’m 6’2 and very muscular but the muscle shrank to nothing. I look like an Ethiopia

Sara, I got my scans after treatment and I’m all clear. Cancer is all gone and you and I had exact same thing.!!!! Think positive

Hey Chris, same here lol. 238 down to 180. Had G'tube installed for "failure to thrive" but it saved me alot of anxiety. 35 rads and 6 weeks Chemo with 2 surgeries. A year and a half later and up to 205.

Thanks Steven! I am fine at 180 but I’m 172 this am. I’m only 3 months out. Did you remove the PEG?

I had one surgery prior to treatment to clean out my neck/lymph node

Hi Chris! Yeah, seems like we had similar paths lol. I had 2 surgeries prior to treatments. They removed left and 3/4 of right thyroid, along with all of their associated nodes. Removed 4 tonsils, upper and lower along with part of back of my tongue which surgeon said " looked suspicious". My diet is limited due to changed tastes. Most things too salty, can't really taste fruit. It's just a bunch of pulp in my mouth lol. My g- tube was removed about 3/4 of a year ago after demonstrating for a month that I could consume without it. I still struggle with foods and it does have its social drawbacks as well. So glad to hear you got this Chris.

I had base of tongue cancer in 2020 . Has 35 rounds of radiation and 7 o chemo . Had a complete response, cancer free ever since

I had 35 rounds of radiation and 7 of chemo for a base of tongue cancer that spread to my lymph nodes and had a complete response . 6 years later I’m cancer free. Message me if you need to chat. Stay strong

Stage 4 tongue cancer 1/3 tongue gone, floor of mouth cancer removed, and left modified radical neck dissection 5 year survival rate is something like 24-50%. I am currently having chemoradiation treatment. 1 week down. I have thought of throwing in the towel many times, but I feel like I have to try. If not for me, for husband, children, and my mother. So far my neck incision is sore, my taste buds are gone, and I have a very different type of tiredness. I'm 64 and was working full time up until the day before surgery. Everyone must decide their path. God Bless you