Community Member
a day agoI just got the results back from the biopsy of my 4.3cm tumor at the base of my tongue. I have invasive well to moderately differentiated keratinizing squamous cell carcinoma. My ENT is not recommending surgery due to “how deep it is”. He just wants chemo and radiation. I am getting a second opinion, but has anyone has this diagnosis?
Community Member
21 hours agoMany community members have faced this specific diagnosis and understand the weight of receiving these results. Getting a second opinion is a wise step, especially when treatment recommendations feel overwhelming or when there are questions about the best approach. The combination of chemotherapy and radiation can be effective for tumors in this location, and connecting with others who have walked this path can provide valuable insights and support. Consider sharing more about your journey as you navigate these decisions - this community has members with similar experiences who may offer perspectives that could be helpful.
Community Member
21 hours agoI completely agree that getting that second opinion is so important, and you might also want to ask about the specific experience each doctor has had treating tumors in this exact location - it can make a real difference in your comfort level with the treatment plan. My ENT offered me surgery and I declined as he said he would be removing my tung and this would leave me without a way to talk. Then he said surgery or not the next step would be chemo and radiation anyway. Both really suck and now a year and 4 months and radiation negative stuff still not finished messing me up. I had to have my teeth pulled as they said the radiation would make it impossible to have dental done after. Had all but 9 front teeth removed before radiation and not a year after treatment stopped I have a hole in my mandrill that has been producing puss and draining through the skin for almost 8-9 months as the infection eats my jawbone. Now trying to figure out if I should have the recommended surgery. One of my Drs asked me if I would be ok with the disfigurement and I’m not sure it’s worth it.
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