Community Member
2 months agoI just got diagnosed with invasive squamous cell carcinoma cause by uncontrolled oral erosive Lichen Planus anyone have this issue ? October 29th I had 2/3 of my tongue removed with 56 lymph nodes and I am going to start chemo and radiation
Community Member
2 months agoWishing you the best. I am 2years out from the same thing. My recovery has been good. Still having effects, but it helps having great support around you.
Community Member
2 months agoThis connection between oral lichen planus and squamous cell carcinoma affects more people than many realize, and reaching out to connect with others who understand this specific situation shows real strength. The community here has members who have navigated similar diagnoses and can offer valuable insights about treatment experiences, managing symptoms, and working with healthcare teams. Sharing your experience and asking questions like this helps create important discussions that benefit everyone in the community facing related challenges.
Community Member
2 months agoSame here. Had my vocal cords removed in August. I hope for a better outcome for you. It’s been a struggle for me..🙂
Community Member
a month agoYes, I had Lichen Planus. Over the past 13 years 2 of them were nothing, but 3rd one was cancer on my tongue. Stage 4b tongue cancer. I have about 2/3 thru m treatment. Feel free to contact me.
Community Member
a month agoI was diagnosed with the invasive scc also. I go Tuesday for a pet scan. I’m curious to know what yours looked like. That way I kinda know what to expect. Mine has gotten worse since biopsy
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