What pain management options work for tongue cancer when medication isn't enough...

Demand the narcotics?

They gave him a fentanyl patch but it’s not working. We’ve asked for a higher dose but still nothing. The is so bad it’s making his bp high. He only has one kidney so I think it’s why they won’t give the higher dose. He’s back in the er and so far they’ve given him morphine but it doesn’t last long.

Has you tried magic mouth?

Chynna, what's his name - I can only pray.

Has he had surgery? I can tell you from experience that the pain after surgery can last at least 4 months. I am just now able to eat without too much pain. I can’t taste much and the sensation is awful. I hope he gets some relief

@Gen His name is Steve and yes we’ve tried the magic mouth. He hasn’t had surgery as of yet because his scan is showing it may be spreading in places where this cancer doesn’t normally occur. Thank you for praying 🙏

Oxycodone did it for me, but he already be beyond that. But I agree with the others it’s some of the worst pain I’ve experienced for sure. My thoughts are with him

When medication alone isn't providing adequate relief, there are several additional pain management approaches that oncology teams often consider, including nerve blocks, radiation therapy for pain control, physical therapy techniques, and complementary methods like acupuncture or meditation. It's important to have an open conversation with the medical team about all available options, as they can evaluate what might be most appropriate based on the specific situation and help create a more comprehensive pain management plan.

Okay everyone. I was stage 3, started I. Tongue and in lymph nodes both sides. No surgery but 6 cysplatin and 35 radiation and I almost died from treatment. I did my PET today and all cancer is gone! Oncologist is ecstatic. The treatment works, just battle through the hell your going through. It’s worth it