CommunitiesOral CancerDoes stage 4 tonsil cancer always feel serious? Mine got delayed

Does stage 4 tonsil cancer always feel serious? Mine got delayed

KP

Community Member

2 months ago

I have stage 4a cancer of my tonsils and limp nodes they want to do surgery but it got canceled I dont feel like I have cancer im up moving around I have more problems with my teeth they took our then anything else anybody else going thru any of this

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11 comments
Comment
CA

Community Member

2 months ago

Every person's cancer experience is unique, and it's completely possible to have stage 4 cancer without feeling severely ill - cancer symptoms can vary greatly from person to person. Having your surgery delayed must feel frustrating and concerning, especially when you're trying to process this diagnosis. Many others in this community have faced similar situations with treatment delays and the disconnect between how they feel physically and their diagnosis, so sharing your experience here can help connect you with people who truly understand what you're going through.

KP

Community Member

2 months ago

Has anybody went to a medical rehab i dont have anyone to help with recover

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JR

Community Member

2 months ago

Hey Kevin….hope you’re doing well considering what you are going through. First of all let me just wish you a Merry Christmas. I’m not so good at words so I hope whatever I say will make sense and help you feel some what better. I was lucky enough to have my younger brother help me when ever he could. I know family is a big part of recovery and sometimes it’s hard to get through without being constantly stressed out by people and having a bad attitude about things but that’s just what it is. My brother has been trying but I can say that sometimes it’s just tough for him to be able to help me out. I haven’t worked since a week before my surgery and that alone has been tough for me to get through this awful disease. When I’m alone I just let it all out. My brother even got a second job to help me out but I see how much it’s weighing on him. I finally had my last radiation therapy and that has been really hard for me. My oldest son helps me financially but that’s not what I want and he knows it. I hid my cancer from him up until it was time for surgery. He was upset with me about it because he really wanted to be there for me. He’s a good son but I don’t want to see him put his life on hold because he’s not going to do anything except be there. He’s just too young for that. I’ve seen what it’s done to my brother. I know that we all need the support and encouragement of our family because they are the only ones who will really care for us. Reach out to your family because I’m not so sure about rehab. There are so many challenges when it comes to having cancer. Yes I’m done with radiation therapy but it’s not over yet. This last week of radiation kicked my body into the ground, my neck is full of blisters and I hurt so much that I can’t have anything touching my neck. I don’t know what to say about your situation only thing is that you need to take care of your health first. I hope that you’re able to take care and that your family will be able to help you.

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SH

Community Member

2 months ago

I was diagnosed with locally advanced stage 4a head and neck cancer. My left tonsil had cancer and later on I found out I had many lymph nodes in my neck also had cancer. I was working 70 hour weeks days before surgery. I never had a clue that I could ever have cancer. I didn’t feel it and many people feel the same. Get the surgery

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SC

Community Member

2 months ago

Wow, they didn’t offer me surgery at all. Doctors want to do chemotherapy and radiation combination. I think I need to talk to another doctor.

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CW

Community Member

2 months ago

I had the surgery then started radiation and chemo. I had no idea I had cancer

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KP

Community Member

24 days ago

Wow its been along time since I've been on this web site all of you sound like angels some one that knows what im going thru to all of you thank you so much for your words well here's a quick up date I got back in to see my dr again he was really shocked he said my cancer seems soft and smaller and I do my pre op Monday and have my surgery he said it looks good I didn't wait to long so here I go the bad news is my little 4 legged angel passed in her sleep the following Saturday she held on as long as she could but I know she is the reason I've made it this there is so much more about it that I can't get out I haven't stopped crying since she passed but I know she is looking out for me but thank you all for your words they mean so much and your all in my prayers

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KP

Community Member

24 days ago

Hey Jesus late but merry Christmas to you as well my friend

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CW

Community Member

24 days ago

Hi Kevin. Stay positive. This type of cancer is very curable. I’m now 6 months out of treatment and my second scans are clean. No cancer. I just met with all three and was told if you’re clear after 6 months still the chance of recurrence is less than 4 percent. Here is the downside. Radiation on your throat and tongue is freaking horrible. Just fight through. Praying for you

KP

Community Member

24 days ago

Chris thanks for the words of encouragement im trying to stay positive they say we will deal with the head and neck cancer then I have lung and liver cancer also so they say one day at a time right

KP

Community Member

8 days ago

Well quick update had surgery they say it went really good im sure im not out of the woods but I've been riding since days after surgery only a quick ride but I feel alive for those short mins your all I my prayers

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