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2 months agoHi I have ovarian cancer 3 and had 6 chemo treatments of carbo/taxol. Pet scan came back clean. Started me on Avastin after chemotherapy and have had 8 treatments (every 3weeks , they say for 2 years. Has anyone been through or going through the same treatment plan? The Avastin is causing extreme fatigue, mouth ulcers , muscle pain ,weakness, brain fog and other side effects. I would like to know if anybody’s on this and if they’re going through the same side effects of me thank you so much Lannie
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2 months agoI was on Avastin for awhile, same as you, every 3 weeks I also had the mouth ulcers Chewing I've chips while getting treatment helped me a lot I also did salt(1/8 teaspoon) and baking soda(1/4 teaspoon) wash 4-5 times a day and used orajel for bad pain when necessary All of that helped Didn't really have any other side effects except brain fog, which I just accept as a part of chemo
Community Member
2 months agoThe side effects you're describing with Avastin are concerns that many people in the ovarian cancer community share, and it's important to discuss these symptoms with your oncology team to see if there are ways to manage them better. Connecting with others who have been on similar treatment plans can provide valuable support and insights, so hopefully some community members who have experience with Avastin maintenance therapy will share their experiences with you.
Community Member
2 months agoI'm sorry you're dealing with all of these side effects. We have cared for patients on a very similar treatment plan, and several of them experienced fatigue, mouth sores, muscle aches, and brain fog as well. First of all, congratulations on your clean PET scan—that's wonderful news. ❤️ If you ever want to explore another opinion or discuss supportive care options, I'd be happy to recommend our team and see if we can help. Wishing you continued strength and recovery.
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a month agoThank you all for the feedback. I really appreciate it!!! I keep thinking I’m the only one with all these side effects. I just feel so horrible.
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a month agoHi Diana, How long did you stay on Avastin? ( # of treatments?) Are you on something different now? Hope you are doing well❤️ Lannie
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a month agoMi L, Hi! Where are you located?? Thanks!
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a month agoWe're based in Chengdu, China. Many of our patients travel here for treatment. Thanks!
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a month agoI did 6 treatments and then my cancer came back😞 So now I'm on Doxil every 4 weeks and no problems so far
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a month agoI have extreme mouth sores from Avastin and Taxol, (I’m also on Keytruda). I just learned about a new device to help with the mouth sores. It is going to be delivered tomorrow. It’s called chemomouth. If you are interested, here is the website: https://chemomouthpiece.com/overview/?gad_source=1&gad_campaignid=23501032929&gbraid=0AAAABCGqUVMrpX_7TsVnATmaZjrA-9CxB&gclid=CjwKCAjwyuDTBhB-EiwANCQhLOq-v0WJrjjXQRAih99WWLzCGfL7gP7rw0YvDskgsBjcpnGIne6LNRoCsNkQAvD_BwE The company representative, Bonni, is extremely helpful.
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a month agoSorry to far! I am in Florida USA
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a month agoSo sorry !! What stage are you? I am stage 3
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a month agoWell, I took avastin and Elahere together. Was a hard combination. I had lots of side effects. The worst was a bloody and constant runny nose
Community Member
a month agoThanks you all for the feedback!!! My fatigue is so extreme, constant headaches, bloated belly, really bad taste in my mouth ,food taste bad,hard to breathe. I was wanting to know if anybody else has had any of this . I feel like there may be something else going on with me and I’m not sure. Lannie
Community Member
21 days agoHi I have had 7 treatments of taxol carbo and just started advising. They took me off. My last treatment cause it raised the B P. Got a scan coming up on Tuesday. Hope everything is ok. Yes avastin cause me headache. Fatigued. No mouth sores. Very much brain fog. But I push myself to still do things not much. Can’t let it beat me up
Community Member
21 days agoYou say for 2 years. Is that the pill or. Infusions
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17 days agoMy ovarian cancer came back after 7 chemos, surgery and 18 rounds of Avastin. Came up all clean my last Avastin was on October 2025. Now my cancer came back after 10 months Back on carboplatin plus Gemcitsbine and Avastin
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17 days agoMy Avastin is infusions every 3 weeks. Nirmal, I am so sorry your cancer returned. So, it returned after 7 chemo( which chemo)? Surgery And 18 rounds of Avastin ? You were cancer free for 10 months? Where did the cancer show up? What found it cat scan or Pet/CtScan? What stage were you? Thanks so much❤️ Lannie
Community Member
11 days agoHi Lannie. You have described my exact experience. Diagnosed with stage 3C Ovarian Cancer May 2025. Had hysterectomy and started Chemo carbo/taxol/Avastin for 6 treatments. Then just Avastin every 3 weeks since October 2025. I have horrible chemo brain, brain fog, can’t find words, hearing sentences and not understanding what was said as if it was a foreign language. Extreme fatigue, daily headaches (some migraines) and GI issues. All of my bloodwork is normal however and my last PET scan was clear. My oncologist says I’m doing very well but I just feel like crap most of the time.
Community Member
11 days agoISo do everyone think like me. I be thinking going through these treatments and stuff and it comes back. You be thinking six chemo treatments as they tell you and then you have more like my situation. I don’t know how many more.yet. But. I Hate to go though this for years. And years
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