Has anyone faced a cancer scare despite negative markers?

Depending upon type of cancer, CA125 may not be a good measure. My CA 125 was 24 and wnl, CA19-9 wnl, and ultrasound showed no anomalies before diagnostic laparoscopy and pathology showed Stage 3 C low grade serous ovarian cancer. Cancer is sometimes so silent. On the brighter side, you are doing a good thing seeing an ob/gyn, but the waiting gives you too much time to fret for sure. I was fortunate to get from diagnosis to next steps very quickly, but my PCP really pushed me to personally advocate and not just wait for a referral to process. Call and see about moving up your appointment and being available for that accommodation…it’s your mental and physical health you are protecting! God is in control, so pray for guidance! Best thoughts in your fight!!!

Debra19 W—- thank you for the info. I just turned 51 and I’m scared. Was hopeful that this will be nothing major… but from what you mentioned it could be more than I thought. I tried calling weekly band my Gyn called herself to the oncologist… unfortunately there are not baby cancellations … but I’ll keep on calling g. I was told that my mri did not shield anything on the lymph nodes so I’m praying thus us good news. I’m just learning about Icarus. Cancer. Want to be well educated ares so I can advocate for myself . I appreciate any info from everyone on this app chat

If you are being scheduled that far out, I would suggest getting an appointment with another doctor/facility. Even MD Anderson in Houston which is #1 in cancer treatment offered me appointments in July this week when I contacted them. Don’t wait! Check other facilities!!!

Ask one of your Dr’s for a CT exam. That’s how I was diagnosed. It lights up any organ in your abdomen and lights up if there are tumors there.

Hello everyone got my Ca 125 @ 775 i have endometrial cancer stage 3A . I had hysterectomy and now doing my chemo. Just finished one , 5 more to go. Be careful everyone

The chemo will really lower your Ca125. Hang in there. Hope you feel ok After chemo. It was ok for me, although days 3-6 didn’t feel so good. I have surgery this surgery and I can’t wait to get this behind me. I still have 2 chemo’s after surgery. Then I will be finished.

Liz! How did your oncology appt go? 🙏

Many community members have shared similar experiences where imaging results raised concerns even with normal tumor markers. Cancer markers can vary greatly between individuals, and some people may have elevated concerns on scans while maintaining normal blood work levels. This waiting period before specialist appointments can feel overwhelming, and connecting with others who understand this uncertainty can provide comfort and perspective. Consider reaching out to the community here to share more about your experience and hear from others who have navigated similar situations.