Community Member
3 months agoHas anyone been diagnosed with clear cell ovarian cancer? Had complete hysterectomy and lymph nodes removed a few weeks ago, and chemo starts in a little more than a week. Having a lot of pain and discomfort in the groin area and at the top, inside of both legs. Has anyone else experienced this? Concerned it may be lymphedema. ??
Accepted Answer
This type of pain and discomfort after surgery involving lymph node removal is something many patients experience during recovery. The groin area and inner thigh sensations could be related to several factors including healing tissues, nerve sensitivity, or swelling. It's encouraging that you're staying alert to changes in your body and asking important questions about your recovery. Consider reaching out to your surgical team or oncologist to discuss these symptoms, as they can best evaluate what's normal for your specific situation and provide guidance. Other community members who've had similar procedures may also share their experiences here.
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Community Member
3 months agoHi Kelli, I was diagnosed with stage 1 clear cell ovarian cancer. Had the surgery on 6/4 (complete hysterectomy and lymph nodes removed too). Started my first chemo on 7/24 and just completed my second chemo on 8/14. I have combo chemo drugs (Taxol & Carbo) and have four more chemo to go. After the surgery, I only had a lot of pain and discomfort in the groin area and stomach area. My surgeon prescribed me Ibuprofen 600 mg and it worked well for me. What stage are you? Also, did you mention to your surgeon about your pain, especially inside both legs? Hang in there!
Community Member
3 months agoI am Stage 1C3. How are you doing with the chemo? All of 2024 I was dealing with treatment for triple negative breast cancer and subsequent surgeries. The ovarian cyst showed up on a CT and all cancer testing was negative until the pathology from having it removed found the cancer. I have already had taxol and Carbo with the breast cancer, but it is my understanding that the dosage is higher for the ovarian cancer.?? I start chemo again in 2 weeks.
Community Member
3 months agoYou’ve been through a lot in 2024! I’m so glad the CT scan caught it early for the ovarian cyst. I’m stage 1c1. The dosage of Taxol (if I remember, it’s 250 mg) and Carbo (I forgot, but I know it’s less than 250 mg since it’s administered only for 30 minutes). I’m about to do my third chemo next Thursday (9/4). I had reactions to Taxol from my first chemo nine minutes after it was administered (shortness of breath, back spasms, and dizziness). But the nurses quickly stopped the reactions by increasing my Benadryl dosage. I had no reactions to Carbo. Thank goodness! For the second chemo, they increased the Benadryl dosage to prevent the reactions again and I was fine. For me, the first week of each chemo was always challenging, dealing with the side effects. The second and third week, I’m usually back to normal. Hang in there! You got this! Oh, how many chemo cycles do you have to complete for the ovarian cancer? I have to complete 6 cycles (once every three weeks).
Community Member
3 months agoHi Kelli, I was diagnosed with stage 2 high grade serous ovarian cancer. I have had a lot of twinges and zings in the groin area and edema in the tops of my thighs. My surgeon said that pain and swelling was likely from sampling numerous lymph nodes in that area. Seven weeks post surgery I still have some extra fluid in my upper thighs. I will be evaluated for lymphedema next week.
Community Member
3 months agoI have to do 6 cycles of chemo. Please let me know how the evaluation for lymphedema goes. ❤
Community Member
2 months agoThis type of pain and discomfort after surgery involving lymph node removal is something many patients experience during recovery. The groin area and inner thigh sensations could be related to several factors including healing tissues, nerve sensitivity, or swelling. It's encouraging that you're staying alert to changes in your body and asking important questions about your recovery. Consider reaching out to your surgical team or oncologist to discuss these symptoms, as they can best evaluate what's normal for your specific situation and provide guidance. Other community members who've had similar procedures may also share their experiences here.
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