Community Member
4 months agoDoes anyone have low grade ovarian cancer? I have declined chemo because it is not supposed to be helpful like with high grade but they want me to try. I'm not sure it is worth the side effects.
Accepted Answer
This is such a challenging decision that many with low-grade ovarian cancer face, and it's completely understandable to weigh the potential benefits against the side effects. Treatment decisions are deeply personal and depend on many individual factors that only medical teams familiar with specific cases can fully evaluate. Consider discussing concerns about side effects with the oncology team, as they might have strategies to help manage them or could explain more about why they're recommending this approach for the particular situation. Others in this community may have valuable experiences to share about their own treatment journeys.
3+ patients found this helpful
Community Member
4 months agoI have low grade serous cancer for 7 yrs. I had 3 surgeries and chemo after both. No chemo does not do anything for this type of cancer the doctors want you to do it since it's "protocol "after surgery. Big waste of time putting that poison in my system for nothing. Still battling this disease
Community Member
4 months agoThank you for sharing!
Community Member
4 months agoI have come a long way using Fenbendazole. I take 1 gram with yogurt.
Community Member
4 months agoI have stage 1C ovarian cancer. I choose to take the chemotherapy. I have had two doses of chemotherapy and minor side effects.
Community Member
4 months agoI did chemo as well. I will be sending you a hug as you take on this journey. Stay strong and positive. Reach out, or feel free to call me if you need to vent. 904-307-4993. I am in Jacksonville, Fl.
Community Member
4 months agoI was diagnosed with low grade serous ovarian cancer in March of this year. I did chemo along with the following off label drugs: Ivermectin, Mebendazole, Atorvastatin, and Doxycycline. I also had a de-bulking surgery and a total hysterectomy after my 4th chemo session (that was May 27). Three more chemo sessions after and just had my CT show NED! I had very few side effects from the chemo. No nausea at all and just a bit tired for 3 or 4 days. I heard these off label drugs may have helped with how I reacted to the chemo. Best of luck to you!
Community Member
4 months agoI'm going on Enhertu this Friday I'm thinking about trying Ivermectin after this chemo if I don't get good results. How did you feel using the Ivermectin?
Community Member
4 months agoI was fine with ivermectin. No side effects. i would suggest you start it now and continue through the chemo. What I have been told is that Ivermectin induces cancer cell death in various cancer cells and can compliment the impact of chemo on the bad cells. Of course you should do your own research and do what is best for you. Good luck!
Community Member
3 months agoI just read that ivermectin should not be taken with chemo. Could be a dangerous interaction. It’s good you had no problems. I’m done with chemo and I’m going to be taking Lynparza. After that, I’ll the ivermectin.
Community Member
3 months agoI took Fenbendazole throughout my cancer journey. It helped immensely with the positive health outcome year to date. It saved my life. S4OC is my diagnosis. I did chemotherapy and had HIPEC surgery.
Community Member
3 months agoThat is really good. I pray my Lynparza does the same thing. Have a great day 😊
Community Member
3 months agoI had 6 rounds of chemo and it left me with really bad neuropathy. I have trouble walking. My pain doctor tried 4 different medications and a cream. Nothing worked.
Community Member
3 months agoThis is such a challenging decision that many with low-grade ovarian cancer face, and it's completely understandable to weigh the potential benefits against the side effects. Treatment decisions are deeply personal and depend on many individual factors that only medical teams familiar with specific cases can fully evaluate. Consider discussing concerns about side effects with the oncology team, as they might have strategies to help manage them or could explain more about why they're recommending this approach for the particular situation. Others in this community may have valuable experiences to share about their own treatment journeys.
Community Member
2 months agoAfter lettizole was not helping I agreed to try chemo. The pains in my legs are terrible after the chemo treatment. Has anyone else had this?
Community Member
11 days agoMy gyn/onc told me straight away that LGSOC (mine was 3c on pathology report/staging 2/24) did not generally respond to chemo and suggested I consider applying for clinical trial even before debulking. With confidence in her judgment and experience I entered the maze. Surgery was optimal and R0. I was randomized to the Letrozole only arm of the trial (vs. chemo then Letrozole) and we all rejoiced over that selection. I was fearful of the possibility of enduring neuropathy after potential non productive, ineffective chemo agents. I have been on Letrozole only since 4/10/24…my trial follow ups started every six weeks for labs with CT every 3 months. So far everything has been NED and my CA 125 (which was only 24 at diagnosis, 13 post op, has stayed 5-7 every check since.) My Foundation One testing failed FOUR times on all samples from diagnostic lap and TAH/BSO/omenectomy specimens. Apparently there was too much vascularity in all samples in 19 cassettes! So, I am blessed to be in a trial with great oversight, and a fantastic team, in association with a brilliant, caring gyn/onc! I am BRACA 1/2 negative. I am now 20 months into trial and feel pretty good! I only have very inoccasional hot flashes ( maybe once or twice a week lasting usually less than a minute). I do have some stiffness in my fingers that is bearable but somewhat annoying. NO NEUROPATHY! So side effects from Letrozole are certainly minimal for me! Making the trial decision was reinforced by a consultation with Clearity… I feel so blessed and thankful for this path decision…God knows us all and answers were provided! Best in your decisions…choose the path that aligns with your heart!
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