Communities›Ovarian Cancer›Should I do chemo for low grade ovarian cancer?

Should I do chemo for low grade ovarian cancer?

CM

Community Member

6 months ago

Does anyone have low grade ovarian cancer? I have declined chemo because it is not supposed to be helpful like with high grade but they want me to try. I'm not sure it is worth the side effects.

2
10 comments
Comment
accepted answer

Accepted Answer

This is such a challenging decision that many with low-grade ovarian cancer face, and it's completely understandable to weigh the potential benefits against the side effects. Treatment decisions are deeply personal and depend on many individual factors that only medical teams familiar with specific cases can fully evaluate. Consider discussing concerns about side effects with the oncology team, as they might have strategies to help manage them or could explain more about why they're recommending this approach for the particular situation. Others in this community may have valuable experiences to share about their own treatment journeys.

3+ patients found this helpful

TM

Community Member

6 months ago

I have low grade serous cancer for 7 yrs. I had 3 surgeries and chemo after both. No chemo does not do anything for this type of cancer the doctors want you to do it since it's "protocol "after surgery. Big waste of time putting that poison in my system for nothing. Still battling this disease

2
CM

Community Member

6 months ago

Thank you for sharing!

CB

Community Member

6 months ago

I have stage 1C ovarian cancer. I choose to take the chemotherapy. I have had two doses of chemotherapy and minor side effects.

1
NI

Community Member

6 months ago

I took Fenbendazole throughout my cancer journey. It helped immensely with the positive health outcome year to date. It saved my life. S4OC is my diagnosis. I did chemotherapy and had HIPEC surgery.

3
KB

Community Member

5 months ago

That is really good. I pray my Lynparza does the same thing. Have a great day 😊

CC

Community Member

5 months ago

I had 6 rounds of chemo and it left me with really bad neuropathy. I have trouble walking. My pain doctor tried 4 different medications and a cream. Nothing worked.

CA

Community Member

5 months ago

This is such a challenging decision that many with low-grade ovarian cancer face, and it's completely understandable to weigh the potential benefits against the side effects. Treatment decisions are deeply personal and depend on many individual factors that only medical teams familiar with specific cases can fully evaluate. Consider discussing concerns about side effects with the oncology team, as they might have strategies to help manage them or could explain more about why they're recommending this approach for the particular situation. Others in this community may have valuable experiences to share about their own treatment journeys.

CM

Community Member

5 months ago

After lettizole was not helping I agreed to try chemo. The pains in my legs are terrible after the chemo treatment. Has anyone else had this?

DL

Community Member

3 months ago

My gyn/onc told me straight away that LGSOC (mine was 3c on pathology report/staging 2/24) did not generally respond to chemo and suggested I consider applying for clinical trial even before debulking. With confidence in her judgment and experience I entered the maze. Surgery was optimal and R0. I was randomized to the Letrozole only arm of the trial (vs. chemo then Letrozole) and we all rejoiced over that selection. I was fearful of the possibility of enduring neuropathy after potential non productive, ineffective chemo agents. I have been on Letrozole only since 4/10/24…my trial follow ups started every six weeks for labs with CT every 3 months. So far everything has been NED and my CA 125 (which was only 24 at diagnosis, 13 post op, has stayed 5-7 every check since.) My Foundation One testing failed FOUR times on all samples from diagnostic lap and TAH/BSO/omenectomy specimens. Apparently there was too much vascularity in all samples in 19 cassettes! So, I am blessed to be in a trial with great oversight, and a fantastic team, in association with a brilliant, caring gyn/onc! I am BRACA 1/2 negative. I am now 20 months into trial and feel pretty good! I only have very inoccasional hot flashes ( maybe once or twice a week lasting usually less than a minute). I do have some stiffness in my fingers that is bearable but somewhat annoying. NO NEUROPATHY! So side effects from Letrozole are certainly minimal for me! Making the trial decision was reinforced by a consultation with Clearity… I feel so blessed and thankful for this path decision…God knows us all and answers were provided! Best in your decisions…choose the path that aligns with your heart!

1
HA

Community Member

5 days ago

I have Stage 2b Grade 2 endometrioid adenocarcinoma. I had surgery to remove a 12cm tumor, both ovaries, tubes, appendix and omentum, as well as adhesions to my bladder and multiple loops of my bowel. My oncologist was confident that he got everything that was visible, but told me I needed chemo because there could be cancer cells that were not yet visible. He didn't really put it to me as an option, just like with the surgery. I could have said no, of course, but I agreed with him. My cancer markers had dropped post-surgery, but still not in the normal range. I decided I would rather go through the chemo and feel a little more secure about my recovery, than skip it and be constantly anxious about whether there would be a recurrence. Kind of a "better safe than sorry" situation. Going through chemo is no guarantee that you'll be cancer-free forever, but it certainly improves your chances. At least that's the case with many types of cancer, maybe not all. I am having my 6th and final treatment next week, and I cannot lie: It has been rough. Definitely the most difficult thing I have ever gone through, physically and mentally. But my oncologist says that I am tolerating the treatments very well, and my CA-125 and CA 19-9 numbers have dropped drastically, so I have no regrets whatsoever.

About Outcomes4Me

  •  

Terms of Service

  •  

Privacy Policy

  •  

Consumer Health Data Policy

  •  

Give Feedback

Outcomes4Me

© 2026 Outcomes4Me Inc. All rights reserved.