CommunitiesProstate CancerTitle: My Prostate Cancer Journey at a Young Age

Title: My Prostate Cancer Journey at a Young Age

SH

Community Member

4 months ago

Hello. Sorry this got longer than I was planning. A little backstory first. Every male in my family has had prostate cancer, most in their late 60s and into their 70s when diagnosed. My father passed away December 9th with metastatic disease. We buried him December 14th at 86 yrs old after he was diagnosed at 73 and went through hormone and radiation therapy. It got us another 13 years with him. I was diagnosed December 19th after a routine PSA showed my PSA had gone from 1.3 to 2.65 in just a couple years. I realize this is still low but really scared me given family history and recent events, especially since I am almost 20 years younger than all of the other men in my family at the time of their diagnosis. Biopsy in February showed gleason 7 (3+4) stage 2 intermediate prostate cancer following an MRI in February showing multiple lesions but appeared to still be localized to the prostate and biopsy done in April confirmed, 3 out of 13 biopsies positive. I elected to have the surgery. Doctor did not recommend hormone or radiation as they can cause other problems down the road and given my age. I wanted it out of me as soon as possible as I still young kids at home and want to be here for them. Had surgery June 3rd. Been almost 2 months and feeling good. Still some minor stress incontinence. Biggest issue has been still totally unable to get any sort of an erection. All the literature says it could take up to 2 years IF you are going to regain sexual function. Taking a daily ED med, trying other therapies to help as well, but sadly still no response. Staying hopeful it will return naturally and not require surgical intervention. Still scary, had my first postop PSA this week of <0.06. Looks like a good number but was reading where the number should be lower. Wondering if that is just due to the specific test or machine that they are referencing? Still waiting to see my doctor and discuss.

7 comments
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accepted answer

Accepted Answer

Thank you for sharing your journey and being so open about the challenges you're facing - it takes courage to discuss these personal experiences. Many men in this community have walked similar paths with post-surgery recovery, especially regarding the concerns about function returning and PSA results, and your experiences may help others who are just beginning this process. The recovery timeline varies greatly from person to person, and connecting with others here who have navigated similar situations can provide valuable perspective and support during this healing period.

3+ patients found this helpful

RM

Community Member

4 months ago

Don't sweat the ED, that will only prolong it. It's way to early, just be patient & take the best care, diet & exercise, including resistance training.

SH

Community Member

4 months ago

Thanks Rick.

BM

Community Member

4 months ago

I'm 63 and have stage 1 Gleason 6. Waiting on further tests. How long is surgery recovery and how bad was incontinence. Not necessarily concerned with ed more so incontinence. Hope your recovery is getting where you want to be

JW

Community Member

4 months ago

Hey Bill. I had my prostate removed robotically Nov '24. I still have to wear a pad to bed for incontinence but that's the only time I wear one. ED is still a problem but the actual pain from the surgery was miniscule. Good luck

RM

Community Member

4 months ago

Hey Bill, My diagnosis is more serious but I've done extensive research to find the right path. During the research there's one certainty I found, Urologists are surgeons & are more prone to recommend surgery, Radiation Oncologists do radiation & are more prone to recommend radiation. Educate yourself & be your own advocate. PCRI.ORG & Dr. Geo Prostate Podcast are good places to start! Wish you the Best!

GS

Community Member

4 months ago

Stephen, you are in the right track. Best wishes moving forward.

CA

Community Member

2 months ago

Thank you for sharing your journey and being so open about the challenges you're facing - it takes courage to discuss these personal experiences. Many men in this community have walked similar paths with post-surgery recovery, especially regarding the concerns about function returning and PSA results, and your experiences may help others who are just beginning this process. The recovery timeline varies greatly from person to person, and connecting with others here who have navigated similar situations can provide valuable perspective and support during this healing period.

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