Community Member
2 months agoCancer research centers around the world have taken money for many,many decades !! From people, governments,corporations, etc,etc!! You have taken and WE THE PEOPLE are OWED !!! There is no way of knowing how much you have taken because it’s hidden from the people who gave !!! My guesstimate 1 1/2 to 2 trillion $$$ !!! And you keep on wanting more !!! For what I ask ??? When 10 million people around the world have died year after year after year of all types of cancer !! Men , women, children all dead and the numbers are going to continue to grow every year !!! I have metastatic prostate cancer and at the time of my diagnosis 2022 the NCCN did not want any type screening done for prostate cancer , no PSA testing !!! But after seeing how many men were dieing year after year because of their guidelines they decided to change their guidelines in 2023 to allow PSA testing !! A little late for me and the 36,000 men who died from prostate cancer last year alone in the USA and the the 100’s of thousands before that !!! And the 400,000 thousand that died worldwide last year alone !!! It’s been 40 years since LUPRON came out, 15 years since Zytiga came out !!! And now you bring out Pluvicto ( are you serious??? ) 1/3 of the men who take this drug die while taking it , Some from Pluvicto itself and others whose cancer was so advanced when given the drug they just died , but not blamed on the drug !! DUH , why were these men given the drug in the 1st place ??? If there are drugs showing promise in clinical trials get them approved ASAP !! We all need new drugs and we need them now !! WE are OWED and ITS TIME to COLLECT, PAYMENT with OUR MONEY is PASSED DUE or are you going to sit on your asses and watch millions more DIE !!!!!
Accepted Answer
The frustration with the pace of cancer research progress is deeply felt across the cancer community, especially when facing advanced disease. Research does face significant challenges - developing new treatments requires extensive safety testing and clinical trials that can take years, though recent advances like immunotherapy and targeted therapies have shown promise for some patients. Many in this community share similar feelings about wanting faster access to promising treatments, and connecting with others who understand this experience, as well as discussing concerns with your oncology team about current and emerging treatment options, can provide valuable support during this difficult time.
3+ patients found this helpful
Community Member
2 months agoYou are so right. Who’s getting all this money?
Community Member
2 months agoThe frustration with the pace of cancer research progress is deeply felt across the cancer community, especially when facing advanced disease. Research does face significant challenges - developing new treatments requires extensive safety testing and clinical trials that can take years, though recent advances like immunotherapy and targeted therapies have shown promise for some patients. Many in this community share similar feelings about wanting faster access to promising treatments, and connecting with others who understand this experience, as well as discussing concerns with your oncology team about current and emerging treatment options, can provide valuable support during this difficult time.
Community Member
2 months agoThat’s the problem with this country, taking years !!! Other countries get new meds approved quickly !!! They shoved Pluvicto thru , the question is why !! For a few months if you survive!! I don’t think many are out playing 18 holes like the commercials show !! It’s a ploy to get you take it and why , it’s called $$$$$$$
Community Member
2 months agoCancer research will always be a money maker, and that's the problem. We suffer,the ones with cancer. But those receiving the funds and monies will always have jobs, etc. So long live the terminationr CANCER!
Community Member
a month agoHi, Timothy — My name is Dave Stauffer of Denver CO, with high-risk localized PCa treated with RT + ADT. I had a negative biopsy in 2018 at age 69 1/2 and said to my urologist: “I’m in the clear;” he responded with a thumbs up. Jump to 2023: I’m diagnosed with Gleason 4+4 and PSA 19.1. I get my medical records and see my blood panels 2018 to ’23 showed PSA 6 and then 9, with no one telling me of the increases. Thus were the lives of myself and my wife needlessly wrecked.
Community Member
a month agoHi Dave , THATS just pure out and out negligence !!! And a malpractice lawsuit to boot !!! Listen, not every doctor graduates at the top of their class and it sounds like yours isn’t even smarter than 4th grader !!! I have had my share of Dr problems as well !! My PCP never even mentioned a PSA test and I didn’t know what it was !!! I told him straight to his face that he just killed me !!! He was speechless and put his head down and I ripped him up and down , I was so pissed off that if I didn’t leave , well I think you get the point !!! Went thru radiation and then off to see an Oncologist !!! This idiot comes into my room with my wife sitting there , spins a chair around and told us that he could get me to 80 yrs old , I was 64 at the time !! I looked at my wife and asked her to leave and let the door open !!! Then all hell broke loose cause I knew right away he never looked at my chart !! He saw prostate cancer and that’s it !! I have stage 4a metastatic prostate cancer !!! I screamed as loud as I could so everyone in the lobby could hear me !! I told him he was a piece of effin chit and every name that could come out my mouth came out loud and clear !!! Went to lobby and told 25-30 people that if he was ur doctor , leave and find a new doctor cause this one doesn’t read ur chart before he comes to see you !! And you don’t want him treating your cancer and that he should quit before he kills more people !! OH, Yes I did !!!
Community Member
a month agoTimothy — Dave of Denver CO here: your experience is similar to mine. I had a negative biopsy at age 69.5 and believed age 70 meant no prostate cancer concern. I said “I’m home free” to my urologist, who gave me a thumbs up. Jump to age 4.5, when an old school retired urologist advised PSA … came back 19.5. Then Gleason 4+4. Then treatment and my own research, which said I’m paying a high price (not dollars, but living) for believing my “Care Team,” which I label “Don’t Care Team.”
Community Member
a month agoI’m sorry that you and your wife had to experience what you had to go thru and are going thru !! I’m sorry for my wife who will be a widow in her 50’s , yes a lot younger than me !!! Irresponsible drs that only care about the $$$$$ and not anyone’s life !! And you are right !!! Your No Care Team and mine !!!
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