Community Member
20 days agoI have started writing about my journey now that I am dealing with this for the second time in one year: “Let’s Talk About It (Because No One Else Will)” This story’s been building in my head for a while now. I’ve gone back and forth about whether to share it, but I’ve realized the silence isn’t helping anyone, not me, not the next guy, not the people who love us. So this is me finally saying it out loud. This is the first chapter of my story, and maybe someone else’s too. Men don’t talk about prostate cancer. Hell, we barely talk about feelings, let alone something that tries to kill us from the inside out, and takes aim at the very parts of us we’ve been taught define what “being a man” means. We’re raised on “walk it off,” “rub some dirt on it,” and “don’t cry.” That might work on a job site when you smash your thumb or pull a muscle, but it doesn’t work when a doctor looks you in the eye and says cancer. When I first got the news, I handled it like I handle everything else — like a construction problem. Something’s off? Find it. Fix it. Patch the hole, reinforce the wall, move on to the next job. I told myself I’d be fine. That’s what strong men do, right? My PSA was 7.6. Not great, but not panic yet. They said, “We’ll monitor it for a year.” Like it was some misbehaving dog that might wander off if I stayed calm. Six months later, it jumped to 19.8. And I didn’t need a doctor to tell me something was wrong — I could feel it. There’s this deep-down sense when something’s growing inside you that doesn’t belong there. They called it a tumor. I called it a bad joke. Next thing I knew, I was signing papers, counting breaths, and promising myself not to Google anything past page one. They took it out. Said it went well. Said I’d done the hard part. And for a while, I believed them. Every follow-up felt like an exhale, like maybe I’d already paid my dues. Then the numbers crept back. .05 to .07. Then .12. That’s when the whisper started again: You’re not done yet. And the worst part? The prostate’s already gone. It’s like tearing down a building and still hearing footsteps inside. Now it’s radiation, seven weeks. And hormone therapy — four months of blocking testosterone. The doctor called it “treatment.” My wife called it “welcome to menopause.” Hot flashes, mood swings, fatigue — the whole damn package. So yeah, I guess now we’ll finally have something in common. But here’s the thing — nobody talks about this. Not the fear. Not the side effects. Not how it screws with your confidence, your head, your sense of who you are. We joke about colonoscopies, but we don’t talk about the real stuff — the scars, the sleepless nights, the quiet moments where you wonder if it’s growing back. Men are dying quietly — not just from cancer, but from pride. We think silence is strength, but all it does is keep us alone. We don’t want to look weak. We don’t want to talk about crying in the dark or feeling like a stranger in our own skin. Well, screw that. I’m not embarrassed. I’m not ashamed. I’m a 54-year-old man who’s swung a hammer his whole life, a recovering addict, on my third marriage, and now apparently going through manopause. If I can talk about it, so can you. This disease doesn’t get to own our silence. Cancer doesn’t get the last word — we do. But only if we stop pretending everything’s fine when it isn’t. So let’s talk about it. The fear, the dark humor, the tears, the tiny victories. Let’s make it normal. Because silence doesn’t make you strong — it just makes you alone. And I’ve learned the hard way: there’s no medal for suffering quietly. There’s just the chance to help someone else speak up before it’s too late. Why I’m Speaking Up For a long time, I thought being strong meant keeping my mouth shut. I grew up around men who didn’t cry, didn’t complain, and definitely didn’t talk about prostates. You worked hard, paid your bills, kept your pain to yourself, and carried on. But cancer changes the math. You start realizing what silence costs — not just you, but everyone around you. The people who love you can’t help if you won’t let them in. And the guys who are walking this same road? They need to see someone talking about it, so they know they’re not the only ones. I’m speaking up because I wish I’d heard another man talk about this before it was me. Someone who could’ve said, “Yeah, it’s scary. Yeah, it messes with your head. But you can get through it.” I didn’t have that voice — so I decided to become it. If my story makes one guy go get checked, or helps one man realize that crying doesn’t make him weak, or gives one wife the words to ask her husband how he’s really doing, then it’s worth every uncomfortable sentence. Cancer might take pieces of me, but it doesn’t get my silence. It doesn’t get my sense of humor. And it sure as hell doesn’t get the last word. So yeah, let’s talk about it. Because the strongest thing any of us can do is be honest — especially when it hurts. If you’re going through this — or love someone who is — you’re not alone. Reach out. Message me. Talk to someone. Because the moment we start sharing the truth, that’s when we start taking our power back.
Community Member
20 days agoYour courage in breaking the silence around men's mental and emotional health during cancer treatment is powerful and needed. The cultural barriers that prevent men from discussing these experiences openly create unnecessary isolation during an already challenging time, and sharing authentic stories like this helps normalize these conversations. The cancer community benefits greatly when people speak honestly about the full spectrum of their experience - the fear, the physical changes, and the psychological impact alongside the medical facts.
Community Member
20 days agoHow was your pathology report after surgery...
Community Member
19 days agoAll margins were clear
Community Member
19 days agoIf you are not aware of it I’m adding a link to Zero Cancer site. It’s dedicated to prostrate cancer and if you scroll you’ll find a link to “ find support” There you can search for a group near you. We meet once a month, all men with prostate cancer and sometimes some wives. Our group brings in speakers each month,I.e. doctors, nurses, social workers, etc. When I was diagnosed I felt like a deer in the headlights. This group has helped me find a way to stay out of those dark places our minds want to lead us into. The conversations, the presentations, just being with a group of men suffering the same dilemma in all stages is really enlightening, it brings us some solace. Good luck..all we can do is keep on keeping on. https://zerocancer.org/
Community Member
18 days agoGene, excellent words! You hit the nail on the head! I've been on this ride for 21 months. I'm 61, stage 4 with Gleason 5+4=9. Had radiation and on Lupron for 20 months so far. PSA at last test in October was still <0.01, undetectable. Apparently the Lupron is working, I sure feel the side effects! I'm grateful for each day and make each one count. I don't know why my primary care doctor chose not to ever test my PSA. He retired during Covid. I finally got one when I complained about pain while riding bike. I had a tumor the size of my thumb by then. I try not to dwell on that, it creates bad energy. This attitude among doctors of not doing routine PSA tests must change now! I've been telling every male I know to demand a PSA test from age 40 up. Hang in there, we're all in this together!
Community Member
18 days agoAwesome, I am going to continue writing about my journey. I am hoping to reach as many men as possible
Community Member
9 days agoGene, I’m David Stauffer, Denver CO, with high-risk localized PCa diagnosed August’23 and treated with 8+ weeks of daily radiation and four months of ADT. All you say strikes home with me. None of my medical providers said so much as a word about my PSA increase (2.3 to 5 to 9) over 18 months. None of the many providers I consulted after my diagnosis said so much as a word about side effects. Providers, publications, and websites (including Outcomes4Me) employ the misnomer “Care Team.” I have a “Don’t Care Team”—as in not caring the least for me, because they’re all totally immersed in the urgency of recommending procedures that maximize billing. All we have—“we” being you, me, and other patients—is each other. Therefore, my thanks to you for your truth-telling, and please say more as you’re able.
Community Member
8 days agoThank you for that. I am writing my journey through this second time. I have found the worst words a Dr can say is "let's monitor it". Never again!
Community Member
7 days agoHi, Gene — Dave Stauffer here again. When I was diagnosed, I asked for advice from a friend who had been through his PCa adventure years ago. He said, “You’ve got to know more about it than your doctors.” SO TRUE! As I’ve found out in the past two years. The key to knowing more: peer-reviewed medical journals. They are the only source I’ve found that tells you what you need to hear rather than what you want to hear. Patient information publications and websites are decidedly NOT among sources you can trust. They’re almost worse than doctors in spewing happy talk instead of real-world talk. Doctors and patient info LIE BY OMISSION; that is, speak the truth, but omit the inconvenient truth—the negatives, the side effects, the prognoses, anything that’s a downer. Which includes this very Outcomes4Me platform, but not the many contributors, such as you and I.
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