Community Member
6 months agoMy first referral was in October 2024. I was called the day after Christmas with the results of the scan and was told it was a PRADS 8. It took 4 months to get a biopsy done (which was my 3rd in 10 years and 2 in between 2 and 3). Those results came in at the beginning of May and I still haven’t been scheduled for surgery. Is this the norm for everyone? As of the Pet scan it hasn’t spread, that was done in late April. It seems to me my docs would be as concerned as I am but to me they are not and I’m to the point of just giving up.
Accepted Answer
Treatment timelines can vary significantly between healthcare systems and individual cases, though the waiting periods described here understandably feel frustrating and concerning. Many patients in this community have experienced similar delays and found it helpful to advocate for themselves by asking their care team about expected timelines and next steps. The feelings of wanting to give up are completely valid - waiting for treatment when dealing with a cancer diagnosis creates enormous stress and anxiety that others here truly understand.
3+ patients found this helpful
Community Member
6 months agoStephen, I recommend you clearly express your concerns directly with your doctor (healthcare team) if not done so already. If you did that already, and your doctor (healthcare team) are not giving you answers to your questions, I recommend getting a second opinion if possible. Nonetheless, they should have already scheduled your treatment (surgery, radiation, etc.) once they confirmed cancer. Wishing you the best moving forward.
Community Member
5 months agoI just had my pet scan and my cancer is still just in the b prostate. Recommendation was either hormone therapy and then radiation after a while. Or robotic surgery and remove it. They did not recommend surveillance because of my high PSA accounts. Any recommendation on which way to go. Thank you
Community Member
5 months agoDon't give up but you have to take control of your care. If you have insurance definitely get 2nd opinion(s). I actually went to 3 Urologists, 3 Med. Oncologists & 3 Radiation Oncologists and really glad I did! The #1 thing in Your Protocol must be to lean on & trust God though!
Community Member
5 months agoAmen Rick. Stephen it took over ten months of tests before i actually got the diagnosis. I chose to get surgery and am waiting patiently now. Apparently there are a lot of us.
Community Member
5 months agoEveryone needs to look into it to make the decision that's best for them! #1. Lean on God, #2. Get adequate information to know what's best for you. #3. Make sure you're comfortable with Your Team. Change your diet, exercise and Be Positive! It is worth the extra effort!
Community Member
5 months agoThank you Rick Amen to that . I will take my time and figure it out. All my friends said remove it .
Community Member
5 months agoYou really need to be comfortable with Your team!
Community Member
5 months agoWell, I have chosen hormone and radiation treatment . I've talked to my friends and family, and even though most said, I should remove it but stand behind me. Have an appointment on the 17th with my radiologist. Thank you, everyone, for your help
Community Member
5 months agoI had my radical prostatectomy on July 7. Unfortunately my surgeon said that he made a mistake and “injured” my rectum. I Just came home Friday night. I’m pretty sad right now but know it will get better with some lock and a lot of prayers. I won’t know the results of the lymph node biopsies until Thursday at the earliest. I’m trying to focus my attention on my new health issues with an Ostomy for an undetermined amount of time. Minimum of 4 months. I’ll be so happy just to get rid of the bulb drain and Foley. No date as to when those come out as yet. Most likely 2 more weeks.
Community Member
5 months agoYes I was told 6 months ago that I had cancer. Still waiting on treatment. But I am dealing with the VA on this
Community Member
5 months agoI have never used my VA for that very reason. My hope is one day our leaders will care about our brothers and sisters who served and sacrificed. I’ve learned over my 67 years not to rely on promises never intended to be kept.
Community Member
2 months agoTreatment timelines can vary significantly between healthcare systems and individual cases, though the waiting periods described here understandably feel frustrating and concerning. Many patients in this community have experienced similar delays and found it helpful to advocate for themselves by asking their care team about expected timelines and next steps. The feelings of wanting to give up are completely valid - waiting for treatment when dealing with a cancer diagnosis creates enormous stress and anxiety that others here truly understand.
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