Has anyone had radiotherapy at City of Hope Arizona for recurrence?

I just need someone to tell me if your PSA is 4.8 in February this year the doctor should of done something sent me for tests in June I went to the emergency room cause I thought I had kidney stones well they take blood and urine this is on a Saturday I get a phone call from my doctor that Monday to come in about the kidney stones went in that Wednesday she scheduled me for biopsy that Friday had it about 10:30 that morning the doctor called me back at 2:30 that day and told me I must come back to the office now I did and he told me I had prostate cancer and my PSA was 216 I pass out what I don't understand the doctor should of done something when my PSA was 4.8 when ever you PSA is over four the doctor knows something is going on

I got my diagnosis as prostate cancer, but it has not spread. There are several options they have given me and I’m waiting to hear the choices. Being very honest, I’ve had a great life. I am down 90 years of age and I feel great, but I know there is but a few more years to go, and I intend to make the most of those years.

Louie A, You were probably under wait and see !!! Only problem was you were waiting but your doctor never bothered to see !! Some PCP doctors like mine don’t even talk about a PSA test , because he doesn’t do them !!! I was diagnosed with stage 4a metastatic prostate cancer !!! I told my PCP to his face that you just killed me !! I was complaining of problems for 9 months !! The medical profession is protected by NCCN guidelines regarding PSA testing !! That is why 10’s of thousands of men are dying from prostate cancer !! If it’s the only test they have , then use it, instead of killing men by not !!!!!!!!!!!!!!!!

At a regular annual physical in 2012, my then PCP counseled that risks of PSA test outweighed benefits. I trusted him. No doctor in the ensuing 7 years ever brought it up. I didn’t know that in 2012 a task force appointed by HHS recommended NO screening for prostate cancer. In those 7 years when no doc recommended screening, the rate of regional and distant metastatic prostate cancer went up4-5%|year. Know; I was one. After passing a kidney stone, a young PA said I wasn’t leaving the clinic until I got tested. I was diagnosed with a T3b, N1, M0 PCa. In 2018, the USPSTF reversed its guidelines to make screening a “shared decision “ between doctor and patient. I hear stories from other guys whose doctors likewise advised against screening. You can’t treat cancer effectively if you don’t know it’s there!! Spread the word.

I also have a recurrence after surgery. Sloan Kettering won’t entertain any therapy or testing until my PSA reaches 2.0. I’m at 1.2 right now. I asked why and they said they didn’t want to over treat. Did you go for testing past PSA every 6 months?

I have been testing every 3 months since diagnosis. When treatment ended at the three year mark, my doctor said I could test at 6 month intervals. I insisted on testing at 3 months despite an undetectable PSA. He agreed. The probability is that I will experience recurrence. I want to catch it asap. Thereafter will follow more adt until failure, a PSMA scan, then Pluvicto.

TD why would u say you have high probability of recurrence...did the surgery not go.well

I am a 3 plus 4 and I am going to get LDR brachytheraphy. It's the best overall treatment for low to moderate prostate cancer.

My PSA is now 1.5, the PET/CT scan was negative. My doubling time was 7 months. In December I have decided to proceed with salvage radiation therapy with curative intent and temporary hormone therapy. I will also participate in germline genetic testing. I wish all in this chain well. God bless.

I been talking Nubeqa for a while now I was afraid to take it at first I take four pills a day two in the morning at 7am and two in the evening at 7pm you just have to get a good meal my PSA was 216 now my PSA is 8 I feel I have a fighting chance now I start chemotherapy November 13 I suppose of started September 25 but when I got to the hospital the doctor said let talk about chemotherapy go finger but I start in November I'm so scared I don't wanna lose my mind when I start chemotherapy god please help me get thru this if I had some one I could talk to that would help so much

Anonymous, because of metastasis to a particular lymph node, surgery wasn’t done. Instead, I had 3 years of ADT concurrent with 2 of Zytiga, and 45 days of radiation, following the treatment protocol from the Stampede trial. Studies of metastatic cancer like mine show recurrence.

Roy, what was your Gleason grade?

Finding the right treatment team for your next steps is such an important decision, and it's completely natural to explore different options for your care. Many community members have shared experiences with various cancer centers, and hopefully someone with specific knowledge about City of Hope Arizona's radiation oncology program will be able to share their insights with you. Consider asking about their experience with the staff, treatment approach, and overall support during treatment when gathering information to help with your decision-making process.