Anyone have experience with proton radiation and hormone therapy for prostate ca...

Just Proton therapy. My cancer has come back after several years in remission. Gleason score of 3+4=7. Not everyone’s cancer comes back. No hormone therapy yet. I still strongly recommend proton therapy.

It has also spread to other parts of my body but all is good I’m getting treatment. I’ll beat it again. Never give up never.

Lowell, I had 44 rounds of radiation and have been on abiratetone,LUPRON,prednisone and some kind of skelegrow for my bones!! I’m going on 2 1/2 yrs on abiratetone, , prednisone, 3 years on LUPRON!! Juice for my bones for 1 1/2 yrs !! The radiation part was easy except for drinking fluids that make you wanna piss so bad but you have to hold it !! That Sucked !!!

Not looking forward to 45 full bladder sessions!

This is the first time that I’ve come across something like this. I’m sorry to hear your having all these problems. I’m starting back again at UofF proton therapy again . I was treated before at MD Anderson but had some issues and wanted to get a second opinion. My cancer has spread to my bones and still have cancer in my prostate. I do understand. It still is best treatment procedure. Hang in there, you’ll get through this.

Tim, my route was similar: 3yrs. Lupron, 2 1/2 abiraterone with prednisone, and 45 fractions IMRT for 81 GYS. Now close to 6 1/2 years from diagnosis, PSA is <.1. Labs in a month. Feeling well. High dose radiation caused cystitis and strictures along with proctitis. All of that is fixed.

Tomorrow, in addition to Orgovyx, I’ll also take abiraterone and prednisone. Proton radiation starts next week for me. My doctor called me today to say the Orgovyx, that I’ve been on for one month, is working because the PSA dropped from 7 to 2. (My PSAs have never been very high. The highest was 9 last month. Other than minor fatigue, I haven’t experienced any side effects after one month on Orgovyx. I hope the addition of abiraterone and prednisone doesn’t increase side effects substantially.

Many community members have shared their experiences with both proton radiation and hormone therapy combinations, and connecting with others who've walked a similar path can provide valuable insights and support. Consider sharing more about what specific aspects of the treatment you'd like to hear about - this can help others in the community provide more targeted experiences and encouragement.