Communities›Relationships›Choosing Ovary Removal Over Medication

Choosing Ovary Removal Over Medication

TF

Community Member

2 years ago

Hello all my pink sister's đź’— I've decided to have my ovaries removed and opted out of taking meds for 5 to 10 year's, I just can't see me doing that.

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25 comments
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accepted answer

Accepted Answer

Making such important decisions about treatment options takes courage, and it's clear you've put thought into what feels right for your situation. Many people in this community understand the challenge of weighing different paths forward, and your choice to share here shows strength. Others who face similar decisions may find comfort in knowing they're not alone in considering all their options.

3+ patients found this helpful

ME

Community Member

6 months ago

What did taking your ovaries out do? Did the doctors specifically say you didn't need to be on AIs? Just curious (and hopefull that I don't need them) because I had a total hysterectomy and the doctors still put me on an aromastse inhibitor.

1
ME

Community Member

6 months ago

What did taking your ovaries out do? Did the doctors specifically say you didn't need to be on AIs? Just curious (and hopefull that I don't need them) because I had a total hysterectomy and the doctors still put me on an aromastse inhibitor.

ME

Community Member

6 months ago

Did the doctors tell you specifically that you didn't need any medication if you had your ovaries out? Just curious (and hopefull that I don't need my aramatase inhibitor) because I had a total hysterectomy before my BC but the doctor never told me I didn't need the meds.

ME

Community Member

6 months ago

Oh my goodness. Sorry. My Internet went out and I inadvertently posted this too many times. 🫤

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TF

Community Member

6 months ago

I go to the gynecologist this week, my oncologist never said it was a must to take the medication it was my choice. I had a partial hysterectomy year's ago and kept my ovaries. Estrogen is my problem with cancer.

1
TF

Community Member

6 months ago

And I've changed my diet to stay away from foods that boost your estrogen levels

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GB

Community Member

6 months ago

Tammy F, can you tell us what foods boost estrogen levels?

1
TF

Community Member

6 months ago

Sugar, red meats, better to do the paleo or Mediterranean diets.

5
RK

Community Member

6 months ago

I had my ovaries out also. I couldn’t tolerate Tamoxifen, so I did it to be able to take aromatase inhibitors instead. However, I couldn’t tolerate any of them either. I’m 5 1/2 years out cancer free. I had ILC Stage IIb.

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VN

Community Member

6 months ago

Hi Tammy F, are you post menopausal? I’m 60 and my breast cancer is estrogen and progesterone positive. I’m wondering if I can also have my ovaries out and opt out of taking the meds. Thank you

TF

Community Member

6 months ago

They told me it wouldn't make any difference because estrogen also comes from adrenal gland and pituitary glands

4
TF

Community Member

6 months ago

I just started my hormone medicine 3 days ago, when do effects slow down?

1
DT

Community Member

6 months ago

I don't have my ovaries and I still have to have radiation and take the hormone pill

1
CM

Community Member

6 months ago

I have IMC stage 1 and Mest with recons is 10/1- I was also wondering about having the ovaries given my cancer is ER and Prg + 99%. I’m premenopausal @ 50 yo. I have a gyn appt scheduled not until Jan 2025. Hoping they will call me sooner like late Nov or early Dec. I’ve had a hx of endometriosis mild in past so concerned about other cancer potentials. I was going to ask about Lupron injection. anyone have any suggestions and thank you for sharing 🙏🏼♥️

RK

Community Member

6 months ago

Charidie, I got BC at 48 and ended up on Lupron because I couldn’t take Tamoxifen and so I could take the post-menopausal endocrine therapy. It was a big mistake. I am sorry to say this, but Lupron was a nightmare. I ended up in the psychiatric hospital because it can cause mania in people with bipolar. The drug lasts 3 months so if it does have bad side effects, you just have to treat them and wait for it to wear off. I’m no doctor, but I would avoid Lupron at all costs. I ended up having my ovaries out instead… I am also at high risk because of BRCA2… so the surgery was approved. Incidentally, they found tons of endometriosis in there—something no GYN ever listened to me about, but that’s another story. Sorry to be so dark, but people need to be more informed by there doctors about Lurpon side effects. I wasn’t told anything about it. I hope this is helpful

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AR

Community Member

6 months ago

That's because your body still makes hormones from fat in your body. I am on anastrozole .started just before surgery for bilateral masectomy and no bad side effects 🙏🏻 also did 24 radiation treatments after surgery .many creams to help with that sunburn effect .good luck to all of us and may we be cured 🙏🏻🙏🏻🙏🏻

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AR

Community Member

6 months ago

I forgot to mention I am 81 yrs old

4
CM

Community Member

6 months ago

Thank you for the information that’s why I’m on this app. I’d rather know ahead of time.

1
CN

Community Member

6 months ago

Avis R. What creams did you use after radiation?

CA

Community Member

6 months ago

Think twice before you have your ovaries taken out ...you can have injection to shut them down temporarily if you want to take an Aromatase inhibitor . Please use caution and do not make that decision quickly because you can't go back

LH

Community Member

6 months ago

I had a total hysterectomy and they put me on Tamoxifen for 5

LH

Community Member

6 months ago

Removing your ovaries isn't going to prevent you from taking meds. Talk to your oncologist and Doctor, it is all going to come down to the type of cancer, the stage, if it's in your lymph nodes, family history. Good luck a fellow pink sister concern for healthy choices đź’“ đź’–

1
DT

Community Member

6 months ago

Why would you do that my ovaries are out and I still have to take the damn tamoxifen all that does is not give you cancer taking this specific type it's got nothing to do with you having ovaries or not just that it's safer and the only cancer you can get is uterine cancer

CN

Community Member

6 months ago

I had a total hysterectomy in 2018 for endometrial cancer and am now taking Anastrozole for 5 years (along with 2 years of Verzenio). The side effects have not been too bad 🤞.

CA

Community Member

2 months ago

Making such important decisions about treatment options takes courage, and it's clear you've put thought into what feels right for your situation. Many people in this community understand the challenge of weighing different paths forward, and your choice to share here shows strength. Others who face similar decisions may find comfort in knowing they're not alone in considering all their options.

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