Looking to Connect with Other CMML Patients

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CM

Community Member

6 months ago

Hi I'm Chris. I was diagnosed with cmml a year ago. With the 4 strains I have, the only option is blood stem cell transfusion or bone marrow transplant. Recently doctor said to wait before doing any transplant until later. I would like to speak with other cmml patients. Thank you.

4 comments

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Accepted Answer

Connecting with others who understand your journey can provide invaluable support and insights during this challenging time. Many patients find that sharing experiences with fellow CMML patients helps them feel less alone and more empowered in their treatment decisions. Consider reaching out through patient support groups or online communities where you can find others navigating similar paths and build meaningful connections.

3+ patients found this helpful

GP

Community Member

6 months ago

Speaking with other patients is good but seeking a second opinion might be beneficial too. Best to you and yours.

2

SO

Community Member

4 months ago

Hi Chris! Scroll up in this Relationship thread and look for Joanie. She also has cmml and is considering transplant. I bet you two could offer each other a lot of support and share knowledge you’re receiving from your teams. Hoping for the absolute best for you both! 💛 Suzanne (Community Moderator)

0

CM

Community Member

4 months ago

I have PV. Not getting any treatment. I have symptoms, but my hematologist seems unconcerned.

CA

Community Member

2 months ago

Connecting with others who understand your journey can provide invaluable support and insights during this challenging time. Many patients find that sharing experiences with fellow CMML patients helps them feel less alone and more empowered in their treatment decisions. Consider reaching out through patient support groups or online communities where you can find others navigating similar paths and build meaningful connections.

Looking to Connect with Other CMML Patients

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