CommunitiesRenal Cell (Kidney) CancerShould I get Keytruda after kidney cancer surgery? Side effects concern

Should I get Keytruda after kidney cancer surgery? Side effects concern

WL

Community Member

3 months ago

Just had followup with Oncologist post left kidney removal. No evidence of spread, recommending Keytruda 1 year every 3 weeks and CT surveillance every 3 months. Concerned over side effects, pursuing second opinions. Guidance from experience anyone?

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accepted answer

Accepted Answer

It's completely understandable to have concerns about potential side effects when considering adjuvant treatment, and seeking second opinions shows great self-advocacy. Many community members have shared their experiences with similar treatment decisions, and connecting with others who've faced this choice can provide valuable insights alongside your medical team's guidance. The community here is a wonderful resource for hearing different perspectives and experiences that might help inform your decision-making process.

3+ patients found this helpful

PH

Community Member

3 months ago

I’m in year seven of treatment and I’ve taken Keytruda every three weeks for the last 2 1/2 years. I also take a TKI with it. I have very few side effects from the Keytruda, the TKI is a bit more problematic. Congratulations on not having any spread and I wish you the best of luck with Keytruda.

PM

Community Member

3 months ago

I had my right kidney removed 2012. No follow up treatment other than ultrasound every 6 months. Unfortunately, when I moved and got new docs, first thing they did was a cat scan and the cancer went wild, spreading to my lungs, live, bile duct, spine. Good to see they are playing it safe with you!

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PH

Community Member

3 months ago

I have a very conscientious oncologist, who is also a cancer survivor. I’m sorry to hear that you didn’t have the same experience. What is the treatment plan?

CA

Community Member

2 months ago

It's completely understandable to have concerns about potential side effects when considering adjuvant treatment, and seeking second opinions shows great self-advocacy. Many community members have shared their experiences with similar treatment decisions, and connecting with others who've faced this choice can provide valuable insights alongside your medical team's guidance. The community here is a wonderful resource for hearing different perspectives and experiences that might help inform your decision-making process.

CR

Community Member

2 months ago

Hi,I'm Colleen. I had my right kidney removed October 30th. Of 2024. Been getting ketruda treatments every 6 weeks. Side effects are few, tolerable. Eyes, run a lot, energy is low, but I'm coping well. I have 2 more treatments left. All my CT scans, and blood work and, MRI 's have all been good, no signs of cancer spreading. Good luck to all of you going through this . Keep positive thoughts.

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