Join others facing Renal Cell (Kidney) Cancer
3.3K membersHow do I stay positive when my tumor isn't shrinking?
Community Member
18 hours agoI've been in treatment for 4 years now. I'm tolerating the treatment pretty well but the size of this tumor is now the size the tumor in my arm was a year and a half ago. I'm really struggling to keep my attitude straight.
What to expect from palliative care services?
Community Member
a day agoIs anyone using, or have used, palliative care services? If so, what was your experience? Was it worth it? What goals did you have and did you achieve them? I am going to meet with a palliative care provider and am curious what others got from the service.
What treatment options did others choose for stage I kidney cancer?
Community Member
8 days agoI have stage I clear cell kidney cancer, and I've been learning about the different options a care team may discuss. These include active surveillance (regular checkups and scans), partial or radical nephrectomy (surgery), ablation (destroying the tumor with cold or heat), and SBRT (precise, high-dose radiation). I understand the best fit can depend on things like tumor size, overall health, and kidney function. I'd love to hear from others who have faced a similar diagnosis. - What options were you offered, and what was it like going through the one you chose? - What questions or experiences stood out to you when you were comparing choices? Thank you for sharing anything that comes to mind.
How can I manage severe treatment flushing and sleep problems?
Community Member
a month agoI’ve been in treatment for 8 years for sarcomatoid metastatic renal cell carcinoma. Have experienced side effects that my naturopathic has been able to neutralize except flushing. It has become severe and interrupting my sleep which leads to fatigue etc. Has anyone found something that works to help neutralize or slow it down? Need help!
What New Treatment Options Help Advanced Kidney Cancer?
Community Member
2 months agoLearn what encouraging findings from the phase III LITESPARK-011 clinical trial mean for patients with advanced kidney cancer. https://outcomes4me.com/cancer-topic/in-treatment-for-renal-cell-kidney-cancer/could-a-new-combination-treatment-change-what-comes-next-for-advanced-kidney-cancer/

Outcomes4Me
Could a new combination treatment change what comes next for advanced kidney cancer?
Learn what encouraging findings from the phase III LITESPARK-011 clinical trial mean for patients with advanced kidney cancer.
Has anyone had Keytruda for kidney cancer?
Community Member
a month agoI was diagnosed with a right kidney cancer (RCC) on July 9, 2026 and had a full nephrectomy on August 6. Before surgery I had an abdominal and pelvic MRI done which shows no signs of cancer spreading. After surgery had a chest CT scan as well with negative results. I'm scheduled to see an Oncologist to receive Keytruda shot treatment. Is anyone receiving this treatment and how bad is the side effects? Thank you all in advance.
Should I start immunotherapy 10 months after kidney removal?
Community Member
2 months agoI have stage 3 CCRCC. My right kidney was removed in October of 2025. I was told to do immunotherapy. Keytruda every 3 weeks. My hospital no longer was going to accept my insurance in 2026 so I had to find a new oncologist. Then I had more insurance issues and they never even offered me a payment plan until now. Finally everything is in place. I’ve had scans and they are clean. So here’s my question. Since I passed that window to begin treatment, will the risks outweigh the benefits? It’s been 10 months and no metastasis. I know this is a conversation that I need to have with my oncologist. But maybe someone here can help me Thanks for my rant
What's new in targeted therapy for advanced kidney cancer?
Community Member
2 months agoResearchers are studying a targeted therapy for patients with advanced kidney cancer. Here's what early findings suggest. https://outcomes4me.com/cancer-topic/in-treatment-for-renal-cell-kidney-cancer/new-approach-emerging-for-advanced-kidney-cancer/

Outcomes4Me
New approach emerging for advanced kidney cancer
Researchers are studying a targeted therapy for patients with advanced kidney cancer. Here's what early findings suggest.
What side effects should I expect on Cabometyx for kidney cancer?
Community Member
2 months agoLearn what to expect during Cabometyx treatment for advanced renal cell carcinoma. Discover tips for managing side effects, diet, and tracking your progress. https://outcomes4me.com/cancer-topic/in-treatment-for-renal-cell-kidney-cancer/what-to-expect-on-cabozantinib-for-kidney-cancer/

Outcomes4Me
What to expect on cabozantinib for kidney cancer
Learn what to expect during Cabometyx treatment for advanced renal cell carcinoma. Discover tips for managing side effects, diet, and tracking your progress.
What are my options after finding an incidental kidney mass?
Community Member
3 months agoDiscover why an incidental renal mass is a silver lining. Learn about precision medicine, genomic profiling, and management options for early-stage kidney cancer. https://outcomes4me.com/cancer-topic/just-diagnosed-with-renal-cell-kidney-cancer/what-happens-after-an-incidental-kidney-cancer-finding/

Outcomes4Me
What happens after an incidental kidney cancer finding?
Discover why an incidental renal mass is a silver lining. Learn about precision medicine, genomic profiling, and management options for early-stage kidney cancer.
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