Join others facing Renal Cell (Kidney) Cancer
3.1K membersShould I start immunotherapy 10 months after kidney removal?
Community Member
8 days agoI have stage 3 CCRCC. My right kidney was removed in October of 2025. I was told to do immunotherapy. Keytruda every 3 weeks. My hospital no longer was going to accept my insurance in 2026 so I had to find a new oncologist. Then I had more insurance issues and they never even offered me a payment plan until now. Finally everything is in place. I’ve had scans and they are clean. So here’s my question. Since I passed that window to begin treatment, will the risks outweigh the benefits? It’s been 10 months and no metastasis. I know this is a conversation that I need to have with my oncologist. But maybe someone here can help me Thanks for my rant
What's new in targeted therapy for advanced kidney cancer?
Community Member
9 days agoResearchers are studying a targeted therapy for patients with advanced kidney cancer. Here's what early findings suggest. https://outcomes4me.com/cancer-topic/in-treatment-for-renal-cell-kidney-cancer/new-approach-emerging-for-advanced-kidney-cancer/

Outcomes4Me
New approach emerging for advanced kidney cancer
Researchers are studying a targeted therapy for patients with advanced kidney cancer. Here's what early findings suggest.
What side effects should I expect on Cabometyx for kidney cancer?
Community Member
10 days agoLearn what to expect during Cabometyx treatment for advanced renal cell carcinoma. Discover tips for managing side effects, diet, and tracking your progress. https://outcomes4me.com/cancer-topic/in-treatment-for-renal-cell-kidney-cancer/what-to-expect-on-cabozantinib-for-kidney-cancer/

Outcomes4Me
What to expect on cabozantinib for kidney cancer
Learn what to expect during Cabometyx treatment for advanced renal cell carcinoma. Discover tips for managing side effects, diet, and tracking your progress.
What are my options after finding an incidental kidney mass?
Community Member
12 days agoDiscover why an incidental renal mass is a silver lining. Learn about precision medicine, genomic profiling, and management options for early-stage kidney cancer. https://outcomes4me.com/cancer-topic/just-diagnosed-with-renal-cell-kidney-cancer/what-happens-after-an-incidental-kidney-cancer-finding/

Outcomes4Me
What happens after an incidental kidney cancer finding?
Discover why an incidental renal mass is a silver lining. Learn about precision medicine, genomic profiling, and management options for early-stage kidney cancer.
Should I have had staging scans before kidney cancer surgery?
Community Member
21 days agoFeeling a bit terrified. In April I had a partial left nephrectomy with a Stage 1b exophytic Papillary Renal Cell Carcinoma mass. My surgeon-oncologist never gave me my post-surgery pathology report. I received a 3-line email from his assistant on the hospital MyChart proclaiming me “cured” and that I would need “…scans every 6 months just in case it comes back” this is verbatim. I was left with many questions after I finally looked at the report, looking up terminology to assess what was what after my surgery. I was never afforded the opportunity. He never returned a call or my request for a conversation. I also found out he had left the hospital (University of Pennsylvania). Had I known he would be leaving I would have never had him do my surgery. With the assistance of my primary MD I decided to go elsewhere and liaise with a new oncologist. I have gone to a cancer dedicated hospital. Upon review of my surgical pathology report by my new oncologist, it appears I should have had more diagnostic testing prior to my surgery to see if the cancer had spread elsewhere. Kidney cancer is slow moving which means by the time they see if you’ve had it a while. My mass was 4.3cm shy of being Stage 2. While post surgery my margins were deemed “clean”, the mass was “grade 3”. This indicates fast moving cancer cells. It’s been explained there is a chance the cancer may have spread. I should have been given a CT Scan of my abdomen, chest, pelvis prior to surgery to check. So after being told I’m “cured” by this co-called MD, I now have to undergo testing to see if there is any cancer elsewhere. I was hoping to be past this at this point. I am grateful to my new oncologist for being so thorough and honest with me. I had the CT Scans on Friday. My brain fog is so bad I am having a brain MRI tomorrow. I am scared. I am angry. I am hoping these scans are clear. And if they are not that I will receive the proper treatment and survive. It’s disgusting I didn’t have an ethical doctor who I am assuming was only concerned with leaving and did not handle my case properly. This is unconscionable. I am glad I immediately secured a new oncologist at a reputable cancer-related hospital. I had no idea there were scans I should have had. I thought everything was being properly handled. You must advocate for yourself.
How to fix stuck medication page when you have no cancer meds?
Community Member
2 months agoI have Stage 4 RCC cancer. It was diagnosed as Stage 1 in 2022, and my left kidney was removed. January of 2025 an inoperable tumor was discovered in my lungs. My treatment was a course of radiation, that appears to have been successful. My question to the group is about an issue I’m experiencing with the app. I’m trying to complete my profile. When I get to the medications page I am stuck. I haven’t received any cancer medications to date. But that page does not offer the option of selecting none. As a result I can’t get past that point and always wind up with a 63% complete profile. Has anyone here experienced the same problem? Any help is appreciated.
Does brain fog after kidney cancer surgery get better?
Community Member
2 months agoHas anyone else dealt with brain fog after surgery? I had a left partial nephrectomy after being diagnosed with Papillary Renal Cell Carcinoma (Stage 1b, Grade 3). I was told they got it all, am in remission, my margins are clear. I am female, just turned 69. The biggest side effects from the surgery has been brain fog and fatigue. I get tired over nothing and I have to rest. The brain fog is otherworldly. I have difficulty focusing when I read. I have difficulty retaining things. My husband will remind me of something he just said to me five minutes ago. Tonight I was heating up some food and had forgotten to turn the heat down and I burned my dinner. Worse, I took the pan off the burner but forgot to turn it off. This is completely out of character for me. I have never been the forgetful type of person. Known for retaining details about everything. My doctor says this is the last thing to “lift”. It unnerves me. Anyone else experiencing this after cancer surgery? If so, how are you handling it?
Has anyone tried Ivermectin or Fenbendazole for stage 4 kidney cancer?
Community Member
2 months agoHas anyone been offered Ivermectin and/or Fenbendazole for stage 4 RCC with mets to liver, rt lung, and C5 spinal. The names of the drugs were given to me by a stranger and I don't know anything else.
New to the community?
Create an account to connect with others navigating cancer.
© 2026 Outcomes4Me Inc. All rights reserved.