Renal Cell (Kidney) Cancer

What does Bosniak IV kidney cyst diagnosis mean?

Anyone have Bosniack lV kidney left side

Why do I feel worse after cancer surgery and where can I get a second opinion?

Update, Heard back from the Mayo Clinic and they said they cant help. I really don't know what to do at this point. Doing the best I can. This is what I tell people about what is going on but in reality I feel like I'm drowning. I still have no support despite asking my PCC. She is trying to help with management of my pain and is an ok job. I don't understand why I feel worse than before surgery. Im waiting to find out if the Mayo clinic will review my case. I hate not knowing what is going. Does anyone have advice on who go to for a medical history review?

Double vision after immunotherapy - could neck pain and eye issues be related?

This past weekend I started having a sore neck on right side almost like a pulled neck muscle. Two days later, i started with double vision only when I turn my head to right side. Had an MRI of brain and CT of eyesockets. All tests came out fine. When I turn my head to the right, my left eye doesn't follow all the way. As of now, they are treating as a nerve issue with Prednisone. Doc think the two issues as unrelated but could both be side effects from immunotherapy.

How can kidney cancer spread to liver and become stage 4?

Im new here. Im 47I was diagnosed with kidney cancer in 2022 i was 43 . They removed half of my kidney. All scans were fine until last month. My liver is now positive for ccc. It says,stage 4. I dont understand how its stage 4.my mom also has pancreatic cancer. Not looking good. She told us in August of 2025. She has known since may of 2025.

Has anyone experienced sarcoidosis with grade 1 kidney cancer?

I was diagnosed 8 February 2026 with ccRCC in my right kidney 5cm. PET scan also lit up mediastinal lymph nodes and pelvic bone marrow. Biopsy of kidney showed grade 1 ccRCC which usually does not metastasize to far lymph nodes so doctors did a lymph biopsy and it showed no cancer, but inflammation. Radiologist said bone CT also looks like inflammation not metastasis. Scheduled to have full right kidney removal on 23 April. Anyone else had grade 1 ccRCC that caused Sarcoidosis in lymph nodes and bone? Nuclear bone scan also showed no bone lesions or cancer.

What does elevated liver enzymes mean during Opdivo and Yervoy treatment?

I was diagnosed in 2021 with RCC and had right kidney removed. In 2025, metastacized to adrenal gland. Had one gland completely removed and other partially removed. Found a small lesion subcutaneous lumbar. Started immunotherapy of Opdivo and Yorvoy about 3 weeks ago. Only side effects seems to be skin itching. Was supposed to have second infusion yesterday but was canceled because liver enzyme was high. Needless to say, not having a great day today - kind of stressed out.

What's it like managing stage 4 RCC with Keytruda and Lenvima treatment?

Hi everyone. My name is Jim and I was diagnosed with RCC in June of 2021. The following month I had a radical Nephrectomy of my left kidney. In August of the same year I began immunotherapy treatment with Keydruda. I have been receiving the treatment ever since. Since then I had been diagnosed with stage 4 cancer which metastasized to my left jaw as well as my remaining adrenal gland which has led to adrenal Insufficiency. But all GOOD! Within the last year I have added Lenvima to the regiment

What comes next after seizures and mystery symptoms following kidney surgery?

Im resting and recovering from parcel nafrectomy on my my right kidney, surgery was the 12th of February. Just as I was starting to get better ( about a week after surgery) I. start to have frequent passing out episodes and extreme anxiety and pain. I woke up at 3am throwing up blood and on my way to the bathroom i had a seizure, hitting my head and passing out. 911 was called and thankfully I was admitted. Overwhelming over the next 6 days they ran every test you can think of, but still no answers.Thankfully they were able to manage the for the most part. I confined to bed except to us the the potty, I understand that completely why. Trying to stay positive but I feel lost and alone. I've been in health care and in hospice nurse forever. Ive never experienced this before with anyone i cared for. Usually you get a cancer diagnosis and soon you have team of doctors there for you. Ive been asking for more information and trying not to go down the Google train on my test results. I could ether have a ear infection that has strep that has caused swelling and liquid on my my brain or it could be something else that has a life expectancy of less then a year. I have a referral to Nero doc and they ate review my case now. Has anyone been through similar things. I need to know what comes next

How do I find a doctor who specializes in rare FH-deficient kidney cancer?

Husband, age 74, diagnosis Nov 25,2025 stage 4 nccRCC. Started Jan 19,2026 on Keytruda(Pembrolizumab) & Lenvima (Lenvatinib). After biopsy, tumor genetics, then full blood genetics, diagnosis was changed on 3/2/26 to FHdRCC. (The next hard part was telling the adult children to be screened for this genetic RCC link) Had 1st CT scan after 8 weeks of treatment, results saw considerably shrinkage of the 3 lung nodules and the liver nodule. The very large kidney tumor 13x15x16 cm shurnk about 20%. Did the "thank you God happy dance". We are encouraged although normal meds for FHd is erlotinib and bevacizumab. Tolerating current treatment of Keytruda &Lenvima with no side effects so doctor thought best stay on these drugs until next scan. We asked doctor "are you an expert in Fumarate Hydratase deficient RCC". His response was "I don't think anyone is". Was not the most encouraging. So I have read up on the medical journals until I feel like I'm ready to give a thesis presentation. I thank all you RCC warriors who have posted your experience...gives us hope!!

How is immunotherapy working for kidney cancer that spread to lungs?

Right kidney removed 2021. Cancer metastasized into my lungs. Current doing immunotherapy and doing quite well with nodules reduced and no additional growth. Been doing immunotherapy since Feb 2024. Keytruda infusions every three weeks and daily Inlyta.