Coping with Small Cell Lung Cancer Treatment Setback

On tarlamab since Feb. So far it has been working Hope you can get the drug

So having a port put in to start treatment is that a good thing or a safe thing or is their other ways

I want to go home an tired of getting the run around from the doctors

I feel like a Guinney pigg not knowing what to do maybe get a second appion from a mother doctor or hospital

Thank you need to talk to someone that understands 🙏

I have had the port in for over a year. I feel it is a good thing because I only get stuck once. Wishing you the best

Hi Lorraine, I'm so sorry what you are going through. It's hard and can be so sad. Stay prayerful cause girl all i did is cr, but I got myself up even saying this to you. It's incredibly hard for you. I have small cell late stage 4 lung cancer for 4 years so far and I had chemotherapy immunotherapy done. Then, back to chemo girl, I lost my hair 3 times, just a walking baldy. lol, now they gonna see about tartamad some form of strong immunotherapy we will see. I wish you the best i will keep in my prayers

Hello, everyone. I had a portal done 4 years ago best thing I did keep those veins from popping

Wow that's crazy if you don't mind me asking how old are you? And your strong as hell for doing this 3 times I will pray for you !

I have stage 4 small cell lung cancer diagnosed over a year ago. I to have a port, it’s great for me. I had tarlamab and it worked for a couple months then radiation and now chemo again I’m on my 5th treatment of drugs to try and keep my tumors at bay…. It sucks but I keep plugging away

Hi Bonnie, I am 63 years old so the scans came back thw had me on etopiside for a little over 30 days and guess what it didn't work at all my lymph nodes got bigger in my chest spots on my li er the bone metastasis got worse I hate those guessing games well try this! hard to breathe, plus very weak legs cannot walk without gasping for air just like 5 feet, so now I stay in bed sucks now I am going to Penn to try this new drug called Taralamad on August 22nd by the way I'm thinking about gummy bears for the pain and feeling crappy

Navigating treatment changes can feel overwhelming, especially when results aren't what you hoped for. Many in this community have found that exploring clinical trials opens new possibilities, and it's encouraging that your medical team is actively pursuing additional options for you. This community understands the emotional challenges that come with treatment adjustments, and sharing your experience here can help connect you with others who have walked similar paths.