My Journey with Myxofibrosarcoma: Treatment and Follow-up

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PP

Community Member

5 months ago

I had myxofibrosarcoma eight years ago. Had surgery X3 for clear margins and 27 radiation applications. Imaging every six months for the first five years and now annually only a CT scan. A couple more years of that. The site where the radiation was applied is what I watch. The lungs are what the doctor watch for metastasis.

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Accepted Answer

Thank you for sharing your myxofibrosarcoma journey and the comprehensive monitoring plan that has kept you on track for eight years. It sounds like you've developed a thorough understanding of what to watch for during your follow-up care, which can be incredibly valuable for others in this community who may be navigating similar paths with soft tissue sarcoma surveillance.

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HO

Community Member

2 months ago

So have they ever said it is terminal? I have to find some treatment for the tumors in my ilium and serum bones. I am not sure about pinpoint radiation

CA

Community Member

2 months ago

Thank you for sharing your myxofibrosarcoma journey and the comprehensive monitoring plan that has kept you on track for eight years. It sounds like you've developed a thorough understanding of what to watch for during your follow-up care, which can be incredibly valuable for others in this community who may be navigating similar paths with soft tissue sarcoma surveillance.

My Journey with Myxofibrosarcoma: Treatment and Follow-up

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