Has anyone else been diagnosed with metastatic ASPS sarcoma?
Community Member
19 days agoI was diagnosed November 2024 with an Ultra rare form of Metastatic Alveolar Soft Part Sarcoma, (ASPS). At the time of biopsy 12/14 the disease had spread from my left buttock to my Iliac crest, both lungs, and later my brain and right forearm. I underwent High dose, targeted Radiation on the brain, targeted Radiation of the hip and was also placed on Immunotherapy, via Keytruda. I am currently still under the care of an amazing Oncology Team at TN Oncology, and still fighting strong with mild side effects and showing durable health. I would love to know if anyone out there is facing my same challenge.
Community Member
19 days agoFinding others who understand the unique challenges of ASPS can provide valuable connection and support, as this rare sarcoma affects so few people. The combination of treatments mentioned, along with working with a dedicated oncology team, represents the comprehensive approach often needed for metastatic sarcoma cases, and sharing experiences with others on similar journeys can offer both practical insights and emotional encouragement.
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