CommunitiesSurgery and RecoveryNew Breast Cancer Diagnosis: Seeking Support and Connection

New Breast Cancer Diagnosis: Seeking Support and Connection

KL

Community Member

8 months ago

My first post. This is a connection I can’t get anywhere else because I don’t know anyone personally that has had breast cancer. I’m thankful to have found this ap. I was diagnosed with IDC er/pr + hers2- grade 3 on 2/26, small mass. MRI shows a 2nd finding 9 cm away from the first. They called this multicentric. This is ILC, so a different cancer but same hormone receptors and grade 1. I’m told these are very treatable. Went from planning a lumpectomy with reconstruction but have changed paths with this new finding. I am opting for a bilateral mastectomy with expanders for future DIEP flap reconstruction once I know what cancer treatment is needed after surgery. My 1st surgery date is 4/14 unless they pull it up. I’d love if it was next week! I’m a 45 yo married mother to two boys ages 18 and 15. These men are my whole world. I am stressed to no end right now!

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8 comments
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accepted answer

Accepted Answer

Welcome to this supportive community where connecting with others who understand this journey can make such a meaningful difference. Having a strong support system in your family while navigating treatment decisions shows incredible strength, and it's completely natural to feel overwhelmed when plans change based on new findings. This community is filled with others who have walked similar paths and can offer insights about surgical options, recovery experiences, and managing the emotional aspects of treatment - feel free to ask questions as they come up.

3+ patients found this helpful

LE

Community Member

6 months ago

The stress and waiting is absolutely the worst. Wishing you the best

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SG

Community Member

6 months ago

I was diagnosed before Christmas and my surgery wasn’t until February 21st. It seemed like forever and I just wanted it out of me. Mine was stage one and about 2cm. So, I was lucky. I had the surgery and now start radiation next week. As far as I know, I won’t have to have chemo. I’m very grateful for that. It is very stressful and sending hugs and prayers!🙏🤕

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RM

Community Member

6 months ago

I was initially staged at 1 based on imaging. My biopsy results came back 10/17 and my surgery date was 11/27. Results came back with a much larger size (5.3cm) of three contiguous tumors and one positive sentinel node. So I was restaged to 3 and chemotherapy was recommended. I was upset about it and debated not taking the chemotherapy. After much prayer and talks with family, I decided to do it. I just finished Round 2 of 4 TC Chemo. It hasn't been the nightmare that I imagined. I am focusing on loving my body through this. I am 57 and soon to be retired. I am looking forward to my next chapter of life. Focus on making the best decision for you and your family. Don't let the fear mongers get the best of you!

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LL

Community Member

6 months ago

Hello, I felt the same way about the wait time. Very stressful. It took me 3 months from the time of diagnosis to surgery, but by then the BC had spread to my lymph node. I had a DMX with immediate DIEP flap & was told 3 wks later that I needed radiation for lymph node involvement. Looking back I wish I would of had a DMX with delayed DIEP.

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DA

Community Member

6 months ago

Sending you the best well wishes. I have IDC er+ her2- as well. Started in 2020 but now stage 4 terminal. My husband and young 10yo with Autism or all I have and I am all they have. I believe it is what has kept me alive. Lean on your boys, fight for them. I hope it gives you strength. Never ever ever give up!

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DH

Community Member

6 months ago

Hi Kelli, Stay strong for yourself and those wonderful men. Along with your faith, they will be your rock during this time. We may not know each other, but we know each other. We are here for you.🩷🩷

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KL

Community Member

6 months ago

Thank you everyone for your support. I love you all!

CA

Community Member

2 months ago

Welcome to this supportive community where connecting with others who understand this journey can make such a meaningful difference. Having a strong support system in your family while navigating treatment decisions shows incredible strength, and it's completely natural to feel overwhelmed when plans change based on new findings. This community is filled with others who have walked similar paths and can offer insights about surgical options, recovery experiences, and managing the emotional aspects of treatment - feel free to ask questions as they come up.

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