Community Member
5 months agoHi, I’m Francene. This is my first post. I’ve been reading all of your posts…Wow, what a bunch of courageous people! You give me hope! But I’m terrified! That’s why it took so long to post. To me it’s so scary to openly state anything about my cancer! I was diagnosed mid February with stage 2 NSCLC. Had surgery to remove upper third of right lung to remove the cancer and the surrounding lymph nodes. Still struggling on decreased breathing capacity! On the check back appointment, I was told they had found more! One day before putting the port in for chemo, I got a call saying the last test preformed showed it was a very rare (2-7 percent of diagnosed cancers)ALK NSCLC still stage 2. Good news was, it’s not treated with chemo but oral med for 2 yrs. I was down for THAT!!! Let me stop before I write a book! The meds I so willingly accepted, gives me debilitating fatigue! Can’t function. Overwhelming depression and not dealing with it well. See my Doc soon. Will talk about it with him! It felt like, if I didn’t talk about it, I wouldn’t even know I had it! But I do, and when I face it…I get terrified! Thanks for reading this. I truly hope you all stay strong and carry on! And through your post, maybe I will also. Bye for now.
Accepted Answer
Welcome to the community! Taking that first step to share can feel overwhelming, but reaching out shows incredible strength. The fatigue and emotional challenges that come with treatment are very real struggles that many community members understand and discuss here. Having these conversations with your doctor is exactly the right approach - they can often help adjust treatment plans or provide additional support options. This community is here to offer encouragement and understanding as you navigate this journey, and many members have found comfort in connecting with others who truly get what they're going through.
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Community Member
5 months agoHi Francene, All of it is terrifying, and it's ok to feel that way. I had never shared my experience with anyone but my family. It took me a while to post here as well, but it has helped to read everyone's experiences and tough journey. Yes, a whole bunch of courageous women for sure!! Debilitating fatigue is an issue for some. Everyone is different. I truly thought I was just being lazy, me, the person who never stood still and was always on the go. The only thing that helped me with that was IV hydration, but they don't give you that all the time. I did ask for it every chance I could. Depression! Huh, let me tell you, it's real. Speak to a third party because sometimes you feel you can't speak to anyone about it. I have a supportive family, but I still felt they wouldn't understand. My mistake was not getting help. I just dealt with it on my own. It will be ok. I will be thinking and praying for you. 💕
Community Member
5 months agoThank you so much for your kind, inspiring words…and prayers❣️Each day is a struggle. I’ve made a good choice coming here and finally saying it out loud. But still terrified. Made my eyes tear up just finding a your response. Thank you.
Community Member
5 months agoHello Francene! It’s absolutely normal to be scared. When you’re told “you have cancer” your mind goes numb, your body goes into protective fight or flight mode. You hear a lot of words coming from the doctor but it is difficult to process through the emotions. For each and every one of us the journey is different but the same. We can all relate, to what others have experienced and are now experiencing. For myself after I left the doctors office and started rewinding (in my head) what he had said and began to process it, I also started to think about what is my role in my treatment and recovery? There is so much information out there it is easy for information overload. You have to find what works best for you. Staying positive and focused on yourself is priority, setting short term and longer term goals has helped me throughout the process. Nutrition and exercise have helped me tremendously. I’m glad I found this group and I hope that I can contribute something positive and helpful to others! Thank you for sharing and good luck to all of those that are here! “Don’t Let The Bad Days Win”
Community Member
5 months agoThank you Richard, you did contribute something positive for me! Your words make a difference! Thanks
Community Member
5 months agoFrancine its all scary N your body goes through alot stay prayed up and keep the faith i ask my Dr everything yes I fight depression also since I been dealing with the cancer Dx
Community Member
5 months agoRichard, You said it perfect! Your body goes into a protective fight or flight mode. When you write, "I also started to think about what my role is in my treatment and recovery." All of it is so hard. And you are correct, we have to take charge as well. Thank you, Richard!
Community Member
5 months agoThank you Karen Day-Young. I almost didn’t respond just yet. Overwhelmed. And I just woke up. The physical way I feel plus humongous headache the second I opened my eyes…but even though, there’s something inside that makes me keep taking that next step. Words like yours and the others that have messaged me…gives my some shards of courage! AND…Im looking forward to my coffee this morning!!! lol! It’s the little things, huh?! Thanks
Community Member
5 months agoKaren Day-Young, One of my coping skills is making light of a tense moments. Which is what I was doing 20min ago when I responded back to you. Sorry if I seemed flippant. The sun is out and it’s beautiful outside. And the birds!!! Between 5am and 6am so many birds chirping and making beautiful noise! I will wade through this, and get a…2nd cup of coffee and settle into getting on with the day. Hope your day is as sweet as you!
Community Member
5 months agoI'm so sorry you're on the same trip I'm on. I try to stay busy but I'm also very new to surgery n treatment as well. It is scary and no amount of advise seems to help but crying it out and ALOT of prayers. I know how lonely cancer makes a person feel but it also helps when I hear from others their strength and encouragement and that's what we're all here for isn't it, to help each other. I'm so thankful we can come to a site like this and just get things off our chest. Prayers to all on this crazy train trip. Chung along
Community Member
4 months agoI’m so glad that you posted and can share your fears. The whole experience is terrifying and all one can do is put one foot in front of the other and share, question and make the best decision for you. Be patient with yourself and the healing. The fatigue lasts for a while and I hope that you can come out on the other side sooner rather than later.
Community Member
2 months agoWelcome to the community! Taking that first step to share can feel overwhelming, but reaching out shows incredible strength. The fatigue and emotional challenges that come with treatment are very real struggles that many community members understand and discuss here. Having these conversations with your doctor is exactly the right approach - they can often help adjust treatment plans or provide additional support options. This community is here to offer encouragement and understanding as you navigate this journey, and many members have found comfort in connecting with others who truly get what they're going through.
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