Side Effects of Ketruda: Seeking Coping Advice

Prayers! 🙏

Thank you. I am going for an ultrasound tomorrow.

Hi Colleen. I also get Keytruda (200 mg every 3 weeks) with manageable side effects. My oncologist tried me on the 400 mg 6 week dose for 2 rounds and my side effects were greatly magnified. So I went back to the lower dose and am doing well. A long way of saying, ask your oncologist about getting your Keytruda in the lower dose. Let us know if that works for you. Good luck!

Thank you so very much. I will ask my doctor, and keep you posted. Some of my friends want me to stop treatments, they say they're not good for me. I want to follow my doctor. I have faith in him. They are entitled to their opinion, but I'm the one going through it. I will see my doctor on the 10th of September for another treatment, I will see what he says about the lower dose. I will post what he says. Again thank you for responding. Have a wonderful day. And I wish you well

Colleen- please listen to your oncologist, not to your friends unless they’re oncologists! I was diagnosed over 7(!) years ago with incurable stage 4 kidney cancer. Although my cancer is still there it is much smaller and I am stable. Unless somebody comes up with a cure I will be in treatment for the rest of my life. I trust my oncologist and the treatment he prescribes. After all he’s kept me alive a lot longer than originally predicted (2years at most). If you haven’t realized it yet, cancer is the scariest game of Whack-a-Mole you’ll ever play. Trust in your oncologist to tweak and or change treatment as needed (I’m on my 4th med regime). S/he should work with you to not only prolong life but to give you quality of life. I hope you have an awesome day!

Thank you for your input, I appreciate it more than you know. I decided I am going with what the doctor ordered. I am so glad you are doing what yours said. They brought you this far. I will pray for you. Have a wonderful day.

Sorry took so Long to reach out, I'm also in the process of moving, that alone is a stressful event

Moving is super stressful. And I imagine having treatment makes it doubly hard. Make sure you make time to rest and eat protein! When I fail to eat enough (75grams) of protein I feel dragged out. Wishing you a good week ahead!

Thank you, you as well

Welcome to the community! Managing side effects from treatment can be challenging, and many members here have found helpful strategies for dealing with fatigue, nausea, joint discomfort, and eye issues. Consider sharing specific symptoms you're experiencing so others who've been through similar situations can offer their practical tips and coping methods.