What to expect after bladder and prostate removal surgery?

Facing such major surgery can feel overwhelming, and reaching out to connect with others who have been through similar experiences shows real strength. Many community members have shared their recovery journeys after bladder removal surgery, covering topics like healing timelines, managing daily activities, and adapting to changes - hopefully some will share their insights to help you prepare for what's ahead.

Hi Murray, Be strong, you can do it. Praying for your recovery.

Now I'm post-7 hour robo surgery that removed bladder and prostate after repurposing a section of ilium into an external stoma. Heavy cramps day 1 at home after 8 hospital days, but everything is moving. Tiny appetite. Yesterday, pathology revealed NMIBC (non-metastatic) tumors in removed bladder. Prior 7 PETscans were neg but the last one went bright positive. Note that monthly Signatera test for specific cancer DNA continues Negative. Hmm, now where is that pound pkg of NY pastrami....

Recovery continues. Having difficulty with bowel movements (constipation). Also, ongoing fatigue. Appetite improved but can't eat more than a third of normal. I am now a master of bag change.