Surgical Complications and Financial Struggles after Losing Disability Benefits

I apologize in advance for taking up space here writing this but I’m going to be brutally and embarrassingly honest. I had the prostatectomy done on Monday July 7. During the end of the surgery my surgeon said that he made a big mistake and cut my rectum. This required an emergency Ileostomy. Not only do I have a Foley catheter I have a bulb drain tube and the Ostomy all for an undetermined amount of time. As I was told by both surgeons, at least til the end of the year. I have an extremely rare neuromuscular disorder called Issacs Syndrome or Neuromyatonia that I was diagnosed with in 2006. I eventually had to go on disability in December of 2017. In June 2025, I turned 67. I did not know until 2 weeks after my birthday that I was going to lose my Medicaid due to the rules being changed in the 1980 by congress. Now I’ve learned this affects all of and how I am covered by insurance. Like most seniors, we live a barely existent life. When I subscribed to United Healthcares Duel Complete, it gave me , us, an extra $295 a month credit for healthy food and medical expenses. Now Social Security will begin taking the $186 per month from my meager monthly payment plus over the next 2 months back fees for the Part B coverage for June and July along with the regular payment of $186 per month. I will also lose my Dual Complete coverage because I’m no longer considered disabled and am just a Social Security Retiree. I will lose what amounts to nearly $500 per month in “cash”. This also means I will be paying a higher copay of which I had none because Medicaid picked up the cost, for prescriptions, Doctor office fees, hospital fees etc. over the last 5 years I have had multiple surgeries to repair torn tendons and ligaments, esophageal stretching spine surgery gallbladder, just to name a few. The kicker is my wife “had” to retire from Vanderbilt Medical Center in January because she was diagnosed with early onset dementia. She now has coverage from United Healthcare but her copays are outrageous. And of course any specialist she sees wants their money upfront before they will see her. The medication she is on is expensive but we were “alive” and getting by without owing anyone money. As I said in an earlier post I had to perform some emergency repairs the day, Friday the 11th, on our house. We have so called friends that always say, “If there is ANYTHING that you need, let us know!” Ha, all we have is each other. These “friends” want $$ for that “Anything you need “ offer. Well, with $5.38 to our names until our next SS check comes up n 3 weeks, I have to figure out how I’m going to dig our front yard up to repair a water line leak that our responsibility. We sure can’t afford to pay hundreds of dollars for our water bill let alone thousands to repair the leak. My point is that I no longer want to recover and would rather the cancer get so aggressive that it only takes a short time to do its deed. At least my wife will have my little bit more than her SS payments and the equity in our home to survive on.