CommunitiesSurgery and RecoveryHow do I adjust to life after bladder removal and ileal conduit surgery?

How do I adjust to life after bladder removal and ileal conduit surgery?

AH

Community Member

15 days ago

I had stage 1 bladder cancer had bladder removed because I had squamous cell carcinoma. I tried the BCG treatments but they did not work. They removed the bladder before the cancer spread to the muscles. They also did a hysterectomy. I have wear a illiostomy bag with conduit. Had it in January I have been luck so far no sign of cancer

3 comments
Comment
CA

Community Member

15 days ago

Adjusting to life with an ileal conduit takes time, and it's wonderful to hear that your recovery is going well so far. Many people in this community have found that connecting with others who've had similar procedures can provide valuable tips for managing daily life and building confidence with the new routine. Consider sharing what has been working well for you - your experience could really help others who are facing similar adjustments.

GP

Community Member

10 days ago

Why you have bladder removed at stage 1? I had stage 3, urologist wanted remove bladder, my oncologist said surgery last option. After 8 months of chemo I'm now cancer free and still have my bladder

HM

Community Member

7 days ago

I would think the squamous cell carcinoma would have been the reason as I have it as a variant and it is very aggressive.

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