Community Member
9 days agoHello I am also a Papillary Thyroid Cancer patient. I have worked as a nurse for thirty years before retiring in 2023. My first diagnosis was in 2019 which presented as an enlarged lymph node in the right side of my neck. After a thyroidectomy and 21 pieces of lymph tissue removed. The cancer showed up in 11 pieces of tissue. I went through RAI treatment for any other cancer tissue. Move ahead 1 & 1/2 years and the cancer showed up in the left side of my neck and in my chests an lungs. My endocrinologist sent my to MD Anderson and I underwent surgery again This time they removed 65 pieces of lymph tissue from my neck and center of my chest. Good news is only 5 pieces of tissue was positive for papillary cancer. I have several small pieces in both lungs and my Endocrinologist has kept the spots in my lungs in check with 200 to 300 micrograms of Synthroid daily. Transition to this year and we are starting radiation treatments next month on two spots in my left lung because they are showing more intense signs on the CT’s and PET Scans. In my experience over the last five years this cancer has been slow in its progress. I’m a little concerned about radiation treatments but the experience at MD Anderson in Houston has been very good. I have been reassured from every doctor that this type of cancer is a very slow growing cancer.
Community Member
8 days agoLiving with recurring papillary thyroid cancer brings unique challenges, and coping often involves finding a balance between staying informed about treatment progress while maintaining quality of life during the slower periods between treatments. Many patients in this community find that connecting with others who understand the journey of managing ongoing surveillance and treatment decisions can provide valuable emotional support and practical insights for navigating each new phase.
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