CommunitiesTriple-negative Breast CancerShould I be concerned after my lumpectomy results?

Should I be concerned after my lumpectomy results?

SA

Community Member

a year ago

I had a lumpectomy on December 18 and had my follow up today. They said they got everything and I may not need either chemo or radiation. Should I be concerned. I was staged 1C and my nodes (3) were clear. Just don’t want it to return. The tumor board meets this Friday and I could be pretty much free to go.

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accepted answer

Accepted Answer

It's completely understandable to have mixed feelings when receiving positive news after a cancer diagnosis - celebrating good results while worrying about the future is a natural response many patients experience. The clear margins and negative lymph nodes are encouraging signs, and having the tumor board review everything this Friday will provide additional expert perspective on the best path forward. This community understands those concerns about recurrence, and many here have navigated similar decisions about treatment options after successful surgery.

3+ patients found this helpful

LP

Community Member

6 months ago

What size was your cancer to not do chemo?

SA

Community Member

6 months ago

1.7 but they now referred to another place and I am waiting to see what they say. I was diagnosed at a military hospital and had a lumpectomy with reconstructive surgery. After they told me this and next I know they said they didn’t have space so I was sent out. I meet medical oncologist next week so will know more then.

SA

Community Member

6 months ago

The hospital I was sent to has set me up to have chemo and then radiation. I have my port put in on Monday and chemo starts on Tuesday.

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LP

Community Member

6 months ago

Good luck!! I started chemo yesterday.

SA

Community Member

6 months ago

How did it go with your treatment. I am doing TC

KE

Community Member

6 months ago

I had the same diagnosis and they did the chemotherapy for four sessions and I had 16 sessions of radiation just to make sure everything was gone, so I’m not sure. I think everyone approaches treatment in different ways. Just make sure that you’re comfortable with the treatment option. They are providing you if that’s nothing and you’re comfortable then just monitor yourself with tests and exams. But I would ask why do some people continue with chemotherapy and radiation with clear margins, it’s more of a preventative thing which I’m not sure always makes sense but that’s what I did.

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LT

Community Member

6 months ago

How was the TC treatment? What did you experience during treatment. I’ve heard of the blisters in the mouth. One patient that I viewed, was told to chew ice during treatment to help with the blisters. I had a lumpectomy on Jan 22 for two tumors close together (7 & 8 o’clock). I was told one week later, by my surgeon, the margins were clean and lymph node was clear. I was so excited and surprised. Had a FU visit with Oncologist, the next week, she suggested chemo, then radiation. I was shocked! Tumors were staged 2a and 2b, one was DCIS, the other had spread outside the cell, heading to the nodes. The Dr offered two options; TC, four infusions, every three weeks, then possibly radiation. This would cause hair loss. The other option was CM, 6 infusions, every three weeks, radiation to be decided later. Possibility of no hair loss. I chose the TC, four infusions. I will have a port insertion on Monday, March 3, the infusions begin on Tuesday March 4. I had one week of elation since cancer diagnosis. Now preparing for treatments and unknown. I have a chemo education and a port education scheduled for Wednesday, Feb 26. I hope some tips will be shared for this journey. Sounds like all of you are ahead of me. I welcome tips or tricks for infusion treatments. I have viewed some experiences on YouTube that were helpful. Blessings and prayers for all who have endured and for all who have this in their future.

KG

Community Member

6 months ago

The TC treatment lasted a few hours with T infusion lasting an hour and the C for 30m. The team at First Health in Pinehurst was compassionate, educational and the Volunteers offering snacks, a boxed lunch and fluids throughout the treatment cycle. My wife experienced itching, had a chemo rash, low grade fever, & some nausea. She also began to lose hair over the last 10 days. My wife had her 2d TC cycle yesterday and received several new scripts that will hopefully reduce the itching. My wife remains strong, positive and she intends to kill this cancer! Go Girl!

LT

Community Member

6 months ago

I had an educational session for Chemo today. They told me that, like yours, the Taxatere would be first, then the Cytoxan following. My treatments will be at Novant, Forsythe, every 21 days. Beverages and snacks will be available. That is nice that volunteers offer a boxed lunch and snacks. I’m sure that, your wife losing her hair, was a little traumatic; even knowing it’s going to happen it would still be a shock. I think I’m ready, but one never is sure! Prayers of comfort and peace for your wife and for you. 🙏✝️ We go girls❣️❣️

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KE

Community Member

6 months ago

With my TC chemo I had all the possible side effects. My doctor said he rarely sees that happen. And telling you my side effects I’m not trying to scare you. After all, my doctor said this is very weird that somebody would get all of these side effects. I just wanted to share them with you in case you get any of them. But remember, you are strong and you can get through this no matter what the side effects. My side effects happened with all 4 sessions. I had mouth sores. Gargle often! I got thrush every time. If you get the velvet tongue and sore throat it’s thrush and you need an anti fungal. I got anal fissures due to horrible constipation. But I also had diarrhea for the first 4 days after. Keep things looser no matter what but not too loose either. I found drinking Calm at night really helped. I got terrible hot flashes, I had nausea and and could not taste anything. My teeth hurt. My body ached terribly. Make sure to keep up on your anti nausea meds and take as often as directed for the first 3 days after. Then see when you need them but don’t let yourself get behind those first few days. I tolerated the first chemo better than the other 3. My hair fell out day 12. I had long hair and cut it short before I started chemo to avoid total shock. My eyelashes didn’t fall out until my 3rd round of chemo. At that point I lost all hair everywhere. With each round of side effects, I started feeling better about the week before I started another chemo session. I did use cold therapy on my hands and feet to try to avoid neuropathy. I still got chemo nails and neuropathy. The neuropathy didn’t show up though until I started radiation. It was a delayed side effect from the chemo. My hands have gotten better. I still have it in my feet. Again, don’t be scared you’re tough you can get through all of this. I just wanted you to know that there are some fixes to some side effects so if you get any of the side effects, just seek out the fix. Good luck and God bless. 

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KE

Community Member

6 months ago

LT

Community Member

6 months ago

Kelli, thanks for the forewarnings and tips. What are chemo nails? A friend told me her nails got brittle so she kept hers polished. Is that what you mean? What did you do for your nails? Cold therapy has not been mentioned yet. Does one have to ask for that? Thanks got your help. I’m sure each person has different responses to medications. I’m about to experience mine. God bless you We can do this with His help.

KE

Community Member

6 months ago

My nails turned black and developed horizontal lines. They became very tender. I’m 5 months out now and they are no longer black and the lines are 3/4 of the way grown out. It’s almost as if a second nail started forming on the top or bottom? I’ve had the one layer come off of 2 nails. My hands are worse than my feet

KE

Community Member

6 months ago

I had researched the cold therapy and ordered the mits and booties off of Amazon. I researched the cold caps also but ultimately decided that I couldn’t probably deal with that many cold items on my body. So I chose to do my hands and feet so that I could try to Ward off any neuropathy. I think that they were helpful. I’ve talked to other people that didn’t use them and they have neuropathy much worse than I do. I got three sets of the Mits and booties and traded them out as they got warm. I put the extras in a cooler with dry ice and froze them at home before going to infusion.

LT

Community Member

6 months ago

Thanks, I thought I was prepared now I’ll need the mitts and booties. I think the ‘Zon’ has time to get them here before my first infusion 🤗

CA

Community Member

2 months ago

It's completely understandable to have mixed feelings when receiving positive news after a cancer diagnosis - celebrating good results while worrying about the future is a natural response many patients experience. The clear margins and negative lymph nodes are encouraging signs, and having the tumor board review everything this Friday will provide additional expert perspective on the best path forward. This community understands those concerns about recurrence, and many here have navigated similar decisions about treatment options after successful surgery.

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