Community Member
3 months agoHas anyone had mucositis and can recommend good home treatments. There is a magic mouthwash that has medication and lidocaine. The mouthwash is a compound so they have to order all the ingredients to make it and it's been taking longer to get the mouthwash. Therefore I'm using warm salt water to gargle and milk of magnesia I apply with a q-tip to sooth the tongue, but it's not always a remedy for the pain. I need more options 😩.
Community Member
3 months agoI did have it during treatment but was able to get the mouthwash that has to be compounded. It helped quite a bit. I’m sorry you are having to deal with this. Praying for complete healing for you.
Community Member
3 months agoMucositis pain can be incredibly challenging to manage, and it sounds like the delay with the magic mouthwash is making things even more difficult. Some community members have shared that cooling foods like ice chips, popsicles, or cold smoothies can provide temporary numbing relief, while others find gentle coconut oil swishing or aloe vera gel (food-grade) soothing for irritated tissues. Hopefully others in the community will share what has worked for them during treatment.
Community Member
3 months agoYes, the magic mouth wash worked for me. Sorry it’s taking so long for you to get some relief.
Community Member
3 months agoMagic mouthwash does work wonders but for me the taste was the most awful taste I have tasted.. good luck to you
Community Member
2 months agoThe magic mouthwash did nothing for me. Ask for dexamethasone rinse to keep inflammation away. And lidocaine gel to apply if it hurts too much. The idea is to not let the sores develop and dexa really helps with that. My routine after eating and before bed was always: salt and baking soda homemade rinse, dexamethasone rinse, biotene rinse for dry mouth. I used the homemade rinse in between, like 6 times a day.
Community Member
a month agoI used the mouthwash and all that did was numb my tongue for a bit, but once that went away it would begin stinging and burning again. The salt water rinses also caused stinging and burning. Finally, I was told to mix a bit of baking soda in warm water and swish that around. That provided some short term relief. What seemed to work the best was a prescription for Fluconazole - One 100 mg tablet a day for 7 days. The pain didn’t start to go away until day 5 or 6, but then stayed away for a couple weeks. Unfortunately, if you’re still doing chemotherapy it will come back, but then my Dr would write me another prescription. Hopefully this works for others too because I know how uncomfortable it can be.
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