Community Member
10 months agoHas anyone been diagnosed with Grover’s disease after keytruda or had a rash from it?
Accepted Answer
Skin reactions, including rashes, can happen with Keytruda treatment, and while Grover's disease is less commonly reported, some patients have experienced various skin-related side effects from immunotherapy. It's worth discussing any skin changes with your oncology team, as they can help determine the best way to manage these symptoms while continuing your treatment.
3+ patients found this helpful
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6 months agoI have had a rash all over, including blisters. After mastectomy next week, on to just Keytruda, worried about reoccurring rash. Oncologist said no alternative to Keytruda. She recommended Dupixent but it's expensive and not sure it will relieve the rash.
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6 months agoI have rashes on both my hands, ears, and face from keytruda. We tried prednisone oral and hydrocortisone which neither worked. My nurse told me to just “roll” with is.
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6 months agoI got heart failure from keytruda.. so Im skeptical
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6 months agoHeart Failure, omg.
Community Member
6 months agoSo sorry to hear about your reactions. I’m not permitted Keytruda because of having 5 autoimmune diseases and this is contraindicated because of possibly dying on this type of medication. This is the only medication I couldn’t try on the recommended list for treatment of an aggressive BRCA triple negative cancer. I’m currently on a PARP inhibitor, Lynparza, and only noting some indigestion, low WBCs that have been chronic with autoimmune neutropenia, and joint pain.
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6 months agoKeytruda damaged my kidney giving me 20,000 units of protein in my urine. I can not take immunotherapy because of this. The chemo pill has given me a left bundle block in my heart that we’re hoping will reverse now that I’m no longer taking it. Wondering what comes next
Community Member
2 months agoSkin reactions, including rashes, can happen with Keytruda treatment, and while Grover's disease is less commonly reported, some patients have experienced various skin-related side effects from immunotherapy. It's worth discussing any skin changes with your oncology team, as they can help determine the best way to manage these symptoms while continuing your treatment.
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