CommunitiesTriple-negative Breast CancerWhy is TNBC coming back when doctors said 0.68% chance?

Why is TNBC coming back when doctors said 0.68% chance?

CM

Community Member

2 months ago

Hey everyone, I’m newly diagnosed TNBC resurgence, stage 4. BRACA1/2 negative with no family history. DCIS TNBC diagnosed 2021 for origin and a double mastectomy with clean margins post surgery. I was told that resurgence chance was 0.68% and not to worry but I’m meeting a lot of women in the same boat as me. The math isn’t mathing. Anyone else in this boat?

2 comments
Comment
accepted answer

Accepted Answer

This situation can feel confusing and concerning when personal experience doesn't match the statistics that were shared. Recurrence rates are based on population studies, but individual experiences within support communities can sometimes make rare events feel more common than the overall data suggests. Many others here have navigated similar feelings about statistics versus reality, and this community understands the unique challenges that come with this diagnosis - sharing experiences and questions like this helps everyone process these difficult situations together.

3+ patients found this helpful

CA

Community Member

2 months ago

This situation can feel confusing and concerning when personal experience doesn't match the statistics that were shared. Recurrence rates are based on population studies, but individual experiences within support communities can sometimes make rare events feel more common than the overall data suggests. Many others here have navigated similar feelings about statistics versus reality, and this community understands the unique challenges that come with this diagnosis - sharing experiences and questions like this helps everyone process these difficult situations together.

CF

Community Member

25 days ago

So sorry to hear this is happening to you. I just had bilateral mastectomies after chemo, lumpectomy at which time they found DCIS and pleomorphic LCIS, plus I didn’t get a pCR (I’m RCB2). So took Xeloda for 3 months and more Keytruda, then the mastectomies. Of course the hope is that there is no metastasis, but I know that’s a possibility. What treatment are they recommending for you?

Outcomes4Me

© 2025 Outcomes4Me Inc. All rights reserved.