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a month agoHi everyone! I just did my 9th (of 12) round of taxol for triple negative invasive ductile carcinoma. I’m stage 1b. Once all 12 rounds of taxol are complete, we go to 4 rounds of AC (1 every 3 weeks). I’m also doing Keytruda every 3 weeks and those infusion will continue for a year. I’ll get a lumpectomy and then 12 rounds of radiation. It’s a long fight. The nurses keep reminding me, “it’s a marathon.” Is anyone else feeling blah? I’m trying to take it one day at a time, I have an incredible tribe of friends and community who are rallying around me and my family, which is helping me get through it. I hope you’re all finding your groove…this is just a blip in our story. Sending you all love.
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a month agoThanks Leslie! I am just about to start what sounds like a similar chemotherapy. Can you share how you have felt? I meet with my oncologist to start making treatment decisions on Tuesday any advice or things you would do differently?
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a month agoHi. I just had my lumpectomy 3 weeks ago. Leslie, I understand completely the blah feeling. I also have a great support group and often felt bad for just feeling blah. It is okay to feel that way. TNBC feels as though it takes over your life and the truth is that it does take over. My suggestion is that you keep joining support groups and sites. Also know that you will probably be on Keytruda after your lumpectomy. I have 9 cycles every 3 weeks that I start in another week. This is a marathon. One you have little control over. Try to keep physically moving when you can, rest when you are tired, eat as much as you can, and keep asking questions. I have a good friend that went through this about 3 years before me. She was invaluable to ask questions to. I was able to ask what she did for specific symptoms and that helped either confirm what I knew or gave me a new remedy to try. Like smelling limes for my nausea. I hope I have helped a little.
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a month agoClaudia, I had a lot of nausea. There is medication to help with that. Ans if one med is not helping enough, ask for other options. During the weekly treatments, I waa fine the day after treatment, then tired and having that "Coming down with something" sick feeling for about 3 to 4 days. Then by day 5 after treatment, I felt back to normal. Just realize that chemo is a cumlative effect on your system. Try to keep your mind busy and make sure you get fresh air as much as possible.
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a month agoManaging fatigue during extended treatment is one of the biggest challenges patients face, and it sounds like you're handling an intensive protocol with remarkable strength. Many people find that gentle movement when possible, staying hydrated, and listening to their body's need for rest can help manage energy levels throughout long treatment plans. The support system you've built around yourself is invaluable during this marathon - leaning on that community while taking each day as it comes is a wise approach that many find essential for getting through extended protocols.
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22 days agoI’ve been through everything you’ve mentioned I had a great support group during treatment and now after. If I could make a suggestion don’t try to fight it if you’re having horrible side effects. Please please please let your doctor know so that she/he can prescribe you something to help you ease the symptoms. It really helps.
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13 days agoI started chemotherapy after my lump to me and my left breast for the same condition. Let me play node removal, reveal that I was stage one.Thank god , it's not in my lymph nodes. How did they tell your stage one?If you didn't have lymph nodes removed?
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13 days agoJust had my head shaved yesterday. As my hair was coming out in clumps, I had 5 inches cut off the week before the hairdresser didn't want to cut anymore, because she said her friend only thinned there for her ca. An act of kindness from great clips , melissa here in abilene , use the clippers and gave me a free cut , so I got my wig styled at texas cosmetology. So\nGrateful as to my faith and god will lead me through this journey. Thanks for sharing
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