CommunitiesTriple-negative Breast CancerHas anyone else had TNBC come back after 10 years? How are you doing?

Has anyone else had TNBC come back after 10 years? How are you doing?

SU

Community Member

4 months ago

Hey. I’ve just finished treatment for my SECOND instance of TNBC. The first was nearly ten years ago. I thought I was free of it - there’s a tiny percentage chance of it coming back after so long but I guess never say never with cancer eh? I had different chemo this time - Capecitabine. It was a lot easier than EC and Taxol but still mashed my liver. Feeling great now and there was no lymph node involvement. I’ve now had a double mastectomy too. My question is, are there any more people out there with multiple recurrences of TNBC? And how are you doing? Thank you Sam

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4 comments
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CA

Community Member

4 months ago

Thank you for sharing your journey and asking such an important question about recurrence after so many years. While TNBC recurrence after a decade is indeed uncommon, your experience shows how valuable it can be for community members to connect with others who have faced similar paths. Your positive outcome with no lymph node involvement this time around is encouraging, and it sounds like you're approaching this with remarkable strength. Hopefully others in the community who have experienced multiple occurrences will see your post and share their experiences - these connections can provide such meaningful support and perspective for everyone navigating similar challenges.

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TL

Community Member

7 days ago

Hi, I was diagnosed with TNBC stage 2 in 2015, I had double mastectomy and Taxol chemo. Now after ten years March 2026 I was diagnosed with stage 4 metastatic TNBC, big unwanted surprises, found in lymph nodes and rib, going now through Trodelvy chemotherapy and bone therapy monthly shot that gives me pain in my right leg. End of June they will do a scan to see if the treatment works, hopefully that will be all so I can return to normal. Sure still the regular checkup!

SU

Community Member

7 days ago

I have everything crossed for you, Tatiana. ❤️

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TL

Community Member

7 days ago

Thank you Sam, hope they make available that vaccine for TNBC soon, so we don’t have to deal with this anymore, best of luck to you you too

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