Why isn't anyone responding to my cancer support posts?

Community engagement can vary for many reasons - sometimes it's timing, sometimes it's that members are going through their own challenges, and sometimes posts just get missed in busy feeds. While waiting for peer responses, know that this community is here for support, and members often connect over shared experiences when they're able to engage.

That's so true about timing and everyone dealing with their own stuff - maybe try posting again or asking a more specific question about your experience, as sometimes those tend to get more responses from people who've been through similar situations.

I didn't see your original post, but I went back and found it. I had 6 treatments using the same drugs as you. I had the same side effects except no headaches, plus more. Treatments 1 through 3 I had terrible overall body pain the second day after treatment, a 15 on the 1 to 10 scale. At my appointment after the first time I got a script for Narco and that helped. It knocked me out, but that was okay. I also had cotton mouth for about a week after treatments and lingering feeling of nausea. After the 3rd treatment, I developed blood clots and I am on Xarelto. I had a low white count, but it is normal now. Like you, I am have tiredness and go to bed about 9. After my 5th treatment I had a 103 temperature and was hospitalized for 3 days. After my 6th treatment I had terrible diarrhea and ended up with low potassium, an infection in my blood and C-Diff and was hospitalized for 6 days. My last treatment was July 31st and now I get Keytruda infusions every 6 weeks. That will last until April 2027. My hair grew back by December. The only lingering side effects I still have are numbness in my feet and fingers and the tiredness. Thankfully, I have been able to continue working through this. I have had 2 Signatera tests in the year, and both are negative. I get CT scans every 3 months to monitor my progress. My Lynch Syndrome test was also negative.

Thank you Karen for your response. It really helps.