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What to expect when chemo becomes an option after years of surgery for sarcoma?

Community Member

2 months ago

Hi, I have had endometrial stromal sarcoma for 20 years. I had a complete hysterectomy years ago. I had a tumor removed and it grew back then also a smaller area lower in my pelvis. Because of so many surgeries they don't want to remove anything else. I might end up with a colostomy bag. The small area more than doubled in size between my 6 month scans and now I'm in chemo. For years they said that wasn't an option. I feel a little confused.

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Community Member

2 months ago

Starting chemotherapy after years of surgical treatments can feel overwhelming and bring up many questions about what to expect with this new approach. Many patients find it helpful to write down their concerns before their next appointment and ask their oncology team about the treatment plan, potential side effects, and what changes in their condition led to this recommendation. The community here understands the challenges of navigating treatment changes and may have valuable experiences to share about managing chemotherapy for sarcoma.

Community Member

a month ago

Doctors are doing their best but a lot of it is guessing what will work for you and trial and error. I have become more about true natural God given health because I don't want to be a patient forever. I don't just want to learn to live with this disease. Through much prayer I know God is directing my path. Seek His wisdom, guidance, and peace. Side effects are scary.

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What to expect when chemo becomes an option after years of surgery for sarcoma?

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