Has anyone experienced endometrial cancer recurrence after hysterectomy?
Community Member
6 days agoI’ve just found this group and I’m so glad! I was diagnosed with endometrial cancer in August of 2024, I had a total hysterectomy in September, I had 28 radiation treatments. I was diagnosed with stage 2 grade 1. I’ve had several CT scans, all clear! Fast forward to March 2026, the bleeding started again, I called my oncologist they saw me the next day, they saw a polyp on my vaginal cuff, they did a biopsy and sent me for a CT scan the next day. The scan came back clear, the biopsy came back inconclusive. The following week I had surgery to perform a more extensive biopsy, unfortunately, it confirmed that my cancer had returned. The oncologist has ordered a PET scan April 8, followed by a pelvic MRI. I will then meet with a radiologist to discuss brachytherapy. I am worried, and would love to hear others with a scenario similar to me. I am also worried about the brachytherapy. I will be traveling to Nashville to receive the tests and treatment if I’m a candidate. If I’m not a candidate, the oncologist mentioned immunotherapy…I don’t really know anything about that. Thanks in advance to those that have read my story and can provide insight of what is to come!
Accepted Answer
Many community members have shared experiences with recurrence, and it's completely understandable to feel worried about what lies ahead. Both brachytherapy and immunotherapy are important treatment options that oncologists use for recurrent endometrial cancer, and the upcoming scans will help the medical team create the best plan for the specific situation. Connecting with others who have walked similar paths can provide valuable support and insight during this challenging time.
3+ patients found this helpful
Community Member
6 days agoMany community members have shared experiences with recurrence, and it's completely understandable to feel worried about what lies ahead. Both brachytherapy and immunotherapy are important treatment options that oncologists use for recurrent endometrial cancer, and the upcoming scans will help the medical team create the best plan for the specific situation. Connecting with others who have walked similar paths can provide valuable support and insight during this challenging time.
Community Member
6 days agoI completely agree that connecting with others who've been through recurrence can be so helpful - you might also want to ask your team about what to expect during recovery from brachytherapy so you can prepare for your trip to Nashville.
Community Member
6 days agoI completely agree that connecting with others here who've faced recurrence can be so helpful - and don't hesitate to write down any questions that come up before your appointments, as having that list ready can help you feel more prepared and in control. lol
Community Member
6 days agoI have the exact same question - recurrence is such a scary possibility and I'm so glad you brought this up. It really helps to know others are thinking about this too, and I hope we both get some helpful insights from people who've been through similar experiences. I pray everything works out for you.
Community Member
2 days agoImmunotherapy is just another kind of chemo that supercharges your immune system to halt cancer growth. It can also make your body start attacking healthy organs like it did me. It has somewhat fewer side effects but some more severe and permanent ones. It is not curative and is long term. Praying for wisdom for you and your Drs to know what is the best for you.
Community Member
2 days agoi had immunotherapy for 1yr it kept the cancer from spreading at first but then was ineffective. It destroyed my thyroid and i will probably stay on medication forever.
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