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20 days agoDLBCL lucky to be alive. They could not figure out my diagnosis for a long time. Mesenteric mass. Biopsy was a mixed bag of no information. Then finally the cervical lymph nodes kicked off… Needle biopsies simply showed reactive or necrotic cells. The nodes grew fast. It was painful and bulky. Could hardly turn my head. Fast forward 6 months…So lucky to be at Moffitt Cancer Center in Tampa. I just completed #5 of 6 or R-Chop. The finish line is in sight Question for the group… how does one make sense of all that has happened? What does a new normal look like? How do you live with the possibility that its an intermission and not a remission?
Community Member
20 days agoFinding a "new normal" after cancer treatment is one of the most challenging parts of the journey, and these feelings about uncertainty are completely understandable. Many in this community have shared similar thoughts about learning to live with the unknown while celebrating each milestone along the way - perhaps others here can offer insights about how they've navigated this transition and found ways to move forward despite the uncertainty.
Community Member
15 days agoI also have Diffuse Large B Cell Lymphoma diagnosed in 11/23. I had severe abdominal pain and a 17.6 cm tumor in my right kidney with mets to my right chest wall area, stage IV. 6 rounds of RCHOP, 6 weeks later a PET scan which showed remission. That was April 30, 2024. By June 2024 I had the pain, severe fatigue and spoke with hematology oncology and was sent CT scan which showed a large tumor on my left kidney with mets to the liver, also already stage 4 but on biopsy it was a much more aggressive form. I can tell you I handled it much worse the second time. I was told I was in remission…how could this be. In January 2025 I had CAR T therapy, which at this point has worked. Much and many other complications happened in between. But anyway, I am about 1 year out with negative PET scans. It was a very long road!
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12 days agoI grew very close to God during my treatment and he continues to be my rock… Along with my husband and friends, my family is wonderful although they do not live close by but would be here and I can talk to them anytime. That’s how I deal with it. The anxiety is real. I also joined a cancer support organisation in my town. And I’ve learned to do yoga and Reiki and attend meditation/breathing classes which helps with the anxiety. It is also helped with my neuropathy.(yoga)
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